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I have applied for a private care case for a young girl with Recessive EB. I have a interview next week to meet her and her mother. The shifts are both days and overnights. The overnights will involve keeping her from scratchin and rubbing her eyes to prevent corneal abrasions.
I really would like to have a good interview and am nervous .
I have been researching this disease and have questions maybe some of you can answer.
Has anyone done any private care for a EB patient? I know there are alot of dressing changes,baths ect.I have alot of experience with dressing changes and g-tubes etc. I am worried that if I hurt her doing dressing changes I will feel guilty.
Any help ,suggestions are greatly appreciated.
Just an update on my new job. I love it! I have learned alot and my patient is a great kid. I was wondering how her attitude would be and she doesn't have any issues I can't handle at this point.
I do overnights and have to keep her from scratching-that seems to be a issue at times. Also,she has eye drops that I find hard to get in her eyes because she sleeps on her side. We give them before she goes to sleep but during the night she needs them also. Any hints??
Doe anyone have a patient who uses a massager? My patient does and I am wondering how much is too much when she uses it? I don't want her to blister under her dressings because of over use. And is incontience a problem with EB patients?
We have fun together doing crafts and I have gotten her interested in gardening and starting seeds.She seems to enjoy having me there which makes me feel good! It makes it easier for me that's for sure. I was kind of expecting a "bratty" child because of what she goes through.She does seem to bulk at taking her meds and I have to keep telling her to take them.
Any helpful hints will be appreciated as well as experiences you have had.
Sometimes it is best to listen to the patient and see if what they are used to is easier to pick up on.Like nurses usually know more about their patients than the Dr. does!
My patient has a bath 3 x a week and that and drsg changes take 4-6 hours to do.My patient listens to music and watches DVD's. She helps with her dressings also. Does your patient help?If not maybe he/she could start. I know it isn't a fun procedure but you do learn to "deal' with it.
I find if I distract her with talk about her interests it goes smoother. Sometimes I bribe her or we make deals on what we will do the next time I come to be with her. Some days there is no way around a "bad" day unfortunately.
If I think of anything elese I'll let you know.
Good luck :redbeathe
NurseLisa64
24 Posts
After 3 weeks and 1 interview with the mom,RN and patient I recceived a call back to come in Monday to see the ins and outs of what I will be doing.I am nervous but eager also to get back into nursing and homecare.Of course this is a whole new experience for me.
I noticed they kept their house cool and was wondering if it was because of the child having to wear all her bandages? That was my guess.
I will be doing 1 overnight shift and 1 day shift to begin with.
The Medicaid paperwork and all that goes along with it seems overwhelming and I haven't even started yet!
I did fill out the forms after I spoke with someone-I was totally lost. I hope it gets easier.
The worst part it seems is that it could take up to 90 days to receive pay-this is in NY.
If there is anyone in NY that can guide me plmk anything you found helpful. I have tried to find a pay rate which is supposed to be on the EMedNY page but couldn't locate it.