Fellow sleep apnea sufferers, can I ask a question? - page 2

Hi all, Finally recieved my CPAP machine yesterday, what a major hassle w insurance companies, since I went PT in June, union insurance would be effective until 6/30, so they stalled and stalled,... Read More

  1. by   hoolahan
    Dennie, it is sooo much better when you are in the comfort of your own home w/o eeg, pulse ox, ekg, yada yada hooked up.

    I have not had an easy time here. First mask the dog chewed up the gel spacer that goes on the forehead, it was the comfort select....anything BUT comfortable! I placed a 2x2 where the gel was all goey, and after the third day I got such a rash, looked like a huge hive, next day spread to the right side of my nose. All my pt's said "Wow, you really got a big one." One lady said when I started to explain it was not a zit, she cut me off and said, "Oh yeah, you picked it didn't you?!" Cracked me up. I did look like a freak.

    SO, my advice to you is...speak to the case managers in your hospital or agency, find out where the nearest DME dealer is to your home. Somewhere you can go to get personalized fit of several different masks.

    I thought to myself, what am I stupid? How many times have I given referrals to my local DME co? They are right in town too! So I called my new best friend Michelle RRT, and she said, come right over. She fit me w a mirage mask, MUCH more comfortable, but even so, still not fitting properly. It was almost on top of my lip, and if I moved it up, it leaked from the top of my nose. Plus, from putting it on too tight, I got makrs on both sides of my nose now. They are now like decubs, and let me tell you, Saturday night I said screw this and slept w/o it, but last night, even tho they weren't healed, I got those little circle bandaids and used them.

    Today, met w Michelle again. I thought I needed a shorter mask, but she fit me w a medium sized glod seal. The top of the mask is much narrower, and that seemed to solve the problem of leaking from the top, and it is sooooo much more comfortable. But I am really afraid I may have a bad reaction to the gel, and end up w my whole face a hivey mess.

    But, I feel soooo much better, I am determined to trouble shoot this to death. The second mask cost me $125 plus had wonderful headgear, so much better. Today, Michelle refused to take any money from me. and I know this mask is at least $95 from pricing on line. If this doesn't work, I'm trying the nasal pillows. I also have had NO problems w/o the chin strap. And hubby reports no snoring, only a little hissing now and then, which does wake me up, so my sleep has not been really great. Last night was the best I slept, once I forgot about the buring pain on eiother side of my nose, and I didn't have to get up early, so I slept from about midnight to 9am!!! Ahhhh! Felt so good, I hopped right out of bed into the shower, and began housework. Not something I normally get revved up about! But hubby was happy when he came home.

    Dennie, all I can say that I have learned so far is, there are a LOT of options to choose from. If it doesn't work, in a day or two, go back and try something new or get them to work w you. Take your machine when you go so they can really check things out. Some people seemed to make such an easy adjustment, but for me it has definitely not be easy, but I do feel better, and I am determined come hel or high water to make it work, and for it to be a comfortable solution.