I was diagnosed with diabetes at the age of 6, and I'm now going on 20 (Type 1). I did MDI for almost 8 years, and I'm now on insulin pump therapy, which I've been doing for about 6 years now, which I love...never, NEVER going back to injections. I usually check blood sugars at least 8x/day, but it usually runs around 10-12x when all is said and done, quite frankly, I think it's worth it, and I have the confidence of knowing 9 times out of 10, the numbers will be in range...as of now, no complications...
I'm compliant now, but I've gotta say that it wasn't always that way - I've been through about every variation (creative and not so much) of denial in the book, diet, exercise, testing blood sugars, you name it, so I can definitely understand where people are coming from when they aren't compliant. I don't approve of it, but I do understand...for some people, being scared into complying by complications doesn't cut it (especially for teenagers) - the way they look at it, they figure they're going to die anyway, as awful as it sounds, but I know people where that's been the case...
As a nurse, I am amazed (and appalled) by patients who do not take care of themselves. Then I have to remember, most do not have the medical knowledge that I have and many do not have the resources that I am blessed to have to pay for the needed supplies.
This along with the fact that sometimes, they don't have the appropriate "role model" - if you have an endo who always looks down on you and never encourages you, then I don't blame the patient for not taking care of themselves, as they don't have the appropriate encouragement to want to change - which brings me to that, whoever said this, I agree - the patient has to want to change, an endo can't make them change. And yes, it is frustrating to have a patient who won't do the right thing - I'm not an RN-CDE yet, but I have been a diabetes camp counselor, and you do get kids who come in and are like, "When I go home, I won't be testing my blood sugars...", and we counselors and educators are nothing short of terrified to let them go...so yes, that is very true...
Although there are many resources and support groups out there, do you think that we, as health professionals are meeting the needs of diabetic pts?
To answer this question - in the near 15 years I've been diabetic, I've learned that it's really a gift that a GOOD endocrinologist has that makes them so awesome - right now, I have a NP diabetes educator who has had diabetes herself for 30+ years, and she has literally made all the difference (as well as determining my career choice - studying to be a nurse and diabetes educator, lol!) Not that I'm saying that the endo I had before was horrible or anything (she was great), but seeing eye-to-eye from another person with diabetes is priceless - I'm all for having more CDE's/endocrinologists with diabetes!
I found the following list online - humorous, but very true down to the last word:
The Top Ten Things Every Endocrinologist/CDE Should Know:
1. The last month of readings hold no clues to what the final A1c will reveal. (Evidenced by myself, it seems that when I run numbers in the 200's, my A1c turns out 7's - numbers in the hundred's, it runs in the 8's...)
2. To be liked by your patients - NEVER scold them about what they eat. We're not stupid, nor are we super-human.
3. Pumping is the Ivy League school of diabetes care (elite). Don't tell your type 1 (or type 2) patients it won't work for them, but make sure they know it will take work.
4. Some individuals will never achieve A1c's under 7 - this doesn't represent a character flaw. They are trying their hardest...
5. Every good thing takes (lots of) time and money. (Such as a cure...)
6. Type 1 and Type 2's are very different. (Duhh, but some endos have not yet grasped this concept)
7. If you tell your young adult patient not to do something because they have diabetes, it is strongly likely that they'll do it...
8. Overeating on hypos are a major source of weight gain.
9. Chocolate should be on everyone's meal plan - its antioxidant, antidepressant, and medical benefits yet undiscovered outweigh the sugar/fat disadvantages.
10. Some people are destined for complications; other people will live till 80 and not get any. It's all in the genes that gave you diabetes in the first place.
Ok, I think I got everything, but if you want, feel free to ask more questions!