I'm in pre-nursing and have a daughter with CF

[roselilli]

Hi there. I'm new here and I have a question for nurses specializing in Pulmonology. My daughter has Cystic Fibrosis and I want to learn all that I can learn to better her at-home-care. Would it be benificial to take RT, too? Her doctors and I are not usually on the same track, I think they're a bit too laid back for CF docs. Her 1st doc retired. She was great, but said that after she lost her last patient she just couldn't take it anymore. Her new doc's are just not on the ball or informing me of ANYTHING! What I'm asking is, would it help as far as her care and my input goes to go into RT, also? Perhaps after I get my ADN? Or maybe before...

[kidzrn3]

Having worked as a CF Nurse Coordinator, I can appreciate your frustrations with caring for a child with CF. I highly recommend that you get a copy of the book "Cystic Fibrosis Medical Care' and another book about CF (can't remember title), written for parents and patients, by Dr. David Orenstein. You can get the books from Amazon.com. Dr. Orenstein is well-renowned in the field of CF. His books are easy to read and understand. I think you will find a lot of answers to your questions. This way you will be educated and be able to be more proactive in your child's care. Good Luck.