Re: tracheomalacia Originally Posted by janfrn 
I'm not overly confident that he's got many choices, given where he lives and the limitations it presents.
Our constant refrain here is "where you're born shouldn't decide why you die," but all too often it's so true.
Baby's getting his g-tube this afternoon. He slept all night and, while he hasn't improved, he's stable enough to pop it in. So we'll see.
It's been such a learning experience for me. Coming from a system where nurses are often the low man on the totem pole, I've been so challenged in all this. Myself and one other nurse, (an amazing NICU nurse from ontario!) have been looked to as "experts" in the whole thing. She and I have made a lot of decisions about his care, rigging up the bubble CPAP, determining his feeding schedule and nutritional requirements, managing his pain, and being the ones to call the team meetings and family meetings. It's scary, because I spend my off hours just thinking about what I might have done wrong or what I might have missed, because I know I'm the one who's getting asked the questions.
We'll see how this all pans out ... pray for his mama if you're the praying kind. She's 21 years old and has already lost her first child and then a set of twins. The village says she's cursed, and she's pretty convinced this is all her fault. It's heartbreaking.
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