I have finally had it-I'm giving up - page 3
I'm giving up on ever being painful or even close to it. I spent a whole year in and out of the hospital with kidney stones, bladder infections, etc. Finally found someone who would actually listen... Read More
Aug 18, '07Quote from morteback surgery is done for instability, if the surgeon said he would be pain free, he (surgeon) was not acting in an ethical manner. drugs may be the only answer for chronic pain..espicially if he has developed "central pain" syndrome.....good luck
I cannot say for sure whether the phrase 'pain free' was uttered, but I think there's a huge difference between 'pain free' and being dependent on oxycontin. I have a feeling that, since all this surgeon does is hand out scripts and sends him on his way, that he is not into discussing the plan for long term pain management (If indeed he feels there is a need for long term management). I know that there are many people who show a tremendous improvement after these surgeries. And I was well aware before he went in to this that there are no guarantees (I think he was a bit more gullible though, unfortunately).
I guess I'll have to research 'central pain syndrome' now, as I have never heard of it. Thanks.
Apr 6, '08Quote from ER-RN2Can the doc give you samples? I had IC for a couple of years and my life was so difficult, so many hours with pain that wouldn't go away...or lessen enuff to function well. I read all I could on it, went to a support group, drank lots of water, went to a urologist and gyn. Then all of a sudden it was gone.I'm giving up on ever being painful or even close to it. I spent a whole year in and out of the hospital with kidney stones, bladder infections, etc. Finally found someone who would actually listen and give me a diagnosis-interstitial cystitis. I was so relieved...I finally knew what what wrong and now I knew what to do about it. Boy was I wrong. I was spent the past 2 years doing everything I could to stop the pain-and I really mean everything. Never given anything for pain. Finally got thrown to a pain specialist-"because I don't know what to do for you". Spent over 2 months to get in there and finally...someone listened. I got a script for 1 month of topamax. It helped some-it was loading doses. Today I went to pick up my scripts and my insurance won't cover them--and they are not narcs. So I am just giving up. I wish I knew what I did to deserve this. I feel like I have a knife in my right kidney and bladder. All I do is scream and cry when I get home because there isn't anything else to do. I live on tylenol and motrin. I know that long term use of those aren't great but at this point I don't even care. If I had an hour of being pain free I don't even know what I would do.
OK...I'll stop venting....Thank you for listening...