I posted this on the cardiac board also. However, my cardiomyopathy was cause by pregnancy and if any of you l&D or pp nurses have any info I would appreciate it.
I have been diagnosed with dilated cardiomyopathy following pregnancy. I am 33yo with 3 children. I just graduated from nursing school
last May and was able to practice nursing for 6 months. I am looking for any support or info that anyone can provide. I just had my 6 month echo and my heart function has declined since first diagnosis. My EF is around 40% according to my echo. My entire heart is enlarged. My tricuspid valve has a moderate to severe "leak" and my mitral valve has a mild "leak." Leak is the term my cardio doc uses. I imagine he means insufficiency. I also have some pulmonary hypertension according to my echo and he is sending me to a pulmonologist. At the time of diagnoses I had a Left calf DVT and suspected PE with the vq scan being inconclusive of the PE but my d dimer was over 2000.
I am asymptomatic 90% of the time. However, I have read everything that I can get my hands on and prognosis says 20-50% of patients die within 1-5 years and another 25% die within 10 years. My cardio doc says that I have mild heart failure and makes me feel like this isn't a big deal. However it feels like a way big deal to me. I thought I was going to be able to return to work. He says that I can work 8 hour shifts and he would like me to start with 3. But who is offering 8 hour shifts anymore?! However before my 6 month echo, he kept telling me that I could return to work whenever I wanted with no restrictions. I am feeling a little angry, confused and sad.
Thats all for now,