I have been living with Parkinson's for five years now. It is a miserable disease but I thought I had it pretty well under control. So far, I've been able to continue working in critical care areas (I am recently a centralized staffing kind of nurse) but yesterday I had a GI bleed who began to projectile vomit bright red blood. To make it concise, I had to take her by EVAC from this little satellite hospital I am doing 2 - 12 hour shifts in ICU to the "big house" -- our mother-ship. She was on Sandostatin, Protonix, NS, and Dopamine. The EVAC staff (four of them to transport the patient and me) packed up the pumps as best as they could. They rolled the patient's stretcher to the ambulance and loaded her in - monitoring EKG and BP and pulse ox.
It was my turn to jump up the two steps and seat myself - oh my God - I could not raise either leg to the first step (quite high)...then I tried 3 or 4 more times - they looked at me like I was nuts...of course, now I have to explain why - so they shrug their shoulders and pick me up under my arms and off we go.....
Getting out was just as bad -- they practically picked me up and placed me on the tarmac....great gentlemen.
I use an electric scooter to go the long distance into the hospital from the parking garage - I don't need it for walking around in the unit but the walking around (following the patient's stretcher) was a nightmare...we were diverted to the wrong place TWICE and finally found the right place only to be sent instead to the ISC bed so the physician would have more time for ...?? ...I'm not sure what.
Long story short, the patient had a TIPS procedure and is doing well tonight (24 hours later) - I got a ride back to the little bitty satellite where I licked my wounds until 0700..... I am back at work tonight but I am afraid - downright scared as to what this damn disease holds for me in the future....I need more strength training, but will it work for me???