Quote from Marvie
Hello, I've been a member for a while and am delighted to finally see a forum for nurses with limitations. I am profoundly deaf and getting deafer everyday. Although I do wear 2 BTE's, lip read, know asl, I do speak and I work in the operating room. Any other deaf nurses out there? I'd love to chat with you sometime.
Hello I am knew to this post but I am very happy to find nurses like me .I am Hard of Hearing for 7 years ,severe in the left and profound on the rt I wear bilateral hearing aids .I don't know why maybe a contamination with a drug called Ribavarin for RSV to treat a cardiac kid while she was in the croup tent ,at the time we did not wear head cap or mask to avoid the crystal to damage our life. I don't know if it is hereditary ,no body could find out so I gave up and started to adjust my new life I also lost my speech and learning was a road to my success I was tri -lingual at the time so I learned both again , Spanish the easy one because is low peak and English the harder one because is high one ,my french is in my head but difficult to restart. I have been a nurse for 20 years ICU and ER it was not easy because people never know what's wrong with you remember we have a SILENCE DISEASE nobody see your defect except when you do not answer their questions if they are on your wrong side. I learned to speak out and be an advocate for my rights in the hospital.Everybody in my unit will be introduce to me and will know my defect so they can approach me the right way ,I have been an advocate to the patients so the nurses will know if the patient is deaf of hard of hearing ,so they will not hear the intercome or call thru a wall when they call a nurse for help,nurses do not know the problems in geriatric population and when they are in the floor the pats can hear if they do not see the nurse at bedside ,so a sticker is placed in the chart for everybody to know the pts defect and how to aproach them,falling pts are common due to hearing lost and poor nursing approach to listen to them.
I am advocate in the community with fire rescue and ER triage nurses to let them know if a pt needs to come to the hospital either from home or street they need to make sure her device is with them or children's cochlear device must be around the accident ,It shoul be placed in triage notes as dentures ,the cost goes from 3000$ to 100.000$ and insurances do not cover it .If a pt gets out of surgery the device should be placed ASAP,nobody should be assessing the patient without their device or the nurse /MD will assess confused or agitated .This happens in many hospitals .
In a Emergency situation like bomb or fired etc nurses should recognized the handicap pts situation to help and translate their needs or even explain what's going on.When NY disaster happens many elderly were asking what" going on ,we turn the TV on with CC to read.
Education is the key to all,human resources should start educating nurses and healthcare personnel during orientation and explain the importance and liability on how to treat disabilities the legal implications to their career and the ADA employee and pts rights .
I am also a member of AMPHL .org (americam medical profesionals with hearing lost)and my state association.
You don't need to be afraid to speak out and be respected with dignity your colegues are nurses ,so they should be more caring toward your as same as their pts or they are in the wrong field,legal rights should be protecting you .If you need a change of phones in your floor with amplification etc let your manager know by law they will give you anything to get you to your daily professional life at the hospital.
President Clinton is hard of hearing and he was our president so you need to be proud you became a nurse.
I know we suffered so much and some of us have been very humiliated ,but we need to become one voice to live a productive life as much as we can.