The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in Medical Surgical & Nursing Manaagement.

The patient I almost failed was my very own sister.

I arrived later than her husband and my older sister, also a RN who had allowed the hospital staff to intubate my dying sister. They allowed their own feelings to get past her wishes. Within 24 hours, I pleaded her case, convinced her husband that being on a respirator was not her wishes and she was extubated with me by her side.

That was fifteen years ago and not a day goes by when I don't think about her.

You did not fail her. She should have had access to Palliative Care. Everyone deserves access to it. I see this senario everyday - it never gets easier.

You did not fail this patient the daughter and the doctor failed this patient. This is a beautiful story it breaks my heart also. I am a CNA who works in the hospice field, the doctor above all other should have gone by the living will. It is up to him.

I also work in an ICU and see this same issue play out more times than I would like to count. I recently had a patient who's family was going through the same thing and did not want to let mother go, regardless of both the doctor's and nurses taking care of her that, telling the family that this would not be what she would have wanted. It's a sad situation that we as nurses face on a weekly basis and we have to provide the best care for these patients, while knowing deep down how miserable and in how much pain they must be in. Thank you for putting into words what we all feel.

Specializes in Rehab.

:mad: If those family members can't produce a POA then tough **** you go with the advanced directives.

Grr.

Specializes in Assisted Living Nurse Manager.

What a very moving piece of work! You really should have this published!!!!

Its is such a shame that so many nurses are so familiar with this scenario. Though modern healthcare has come so far as to let us keep people alive the way we do, people lose sight of if we should. We can, but should we. It breaks my heart.....as it breaks many of our hearts.

Where I live, a Living Will is a Legal Document, to which we must abide by, no matter what the family has in mind for thier loved one. I feel for this patient who died a slow agonizing death, it is not fair. Always ask yourself "would I want this" when you are with your patients. Advocate for your patients, always!

This is beautiful. Such a sad story but your writing is amazing:redpinkhe

Specializes in CCU, med/surg (cardiac/tel).

Thank you for the post. It was very moving. It is a situation that we hope we never incounter but as a nurse with 7 years of expericence I have delt with it several times. It can be heart breaking. I make it a point that with every pt that I admit that we discuss end of life requests. I do it in front of the family and am very specific in the converstation. I believe it doesn't do anyone any good to beat around the bush. I make a point of saying that I don't expect to need to use the information but it is very helpful to know that way we all (patient, family, and staff caring for that pt) understand exactly what are their wishes. I have had several newer nurses overhear my conversations and have questioned my frankness about the subject, and I explain that it is a hard thing to think about but it saves so much heart ache, regret, and sometimes fighting when we are upfront and direct. On a more personal note I have a father that wishes to be a DNR. And being the upfront nurse/daughter we have had long discussions about it. As soon as we were done I immediately told him to get in writing that that he needed to have the same discussion with my other siblings so that I'm not the mean child that wants to kill daddy. That he needed to be the one to discuss it with them and he needed to be as upfront and frank about it with them as he had been with me. End of life situations are hard, but lets face it with digity and grace and God forbid a smile that we can let our loved one meet our maker on their terms not ours.

I agree about engaging patients and families in conversation regarding advanced directives when we are admitting them. Making a decision as important as DNR or specific wishes in the event of a terminal outcome should be done when the patient/family are not in a crisis situation. Emotions run high during terminal events and prevent the patient from recieving the care and comfort they need from their loved ones. We are in the business of life and promoting comfort , what better way than helping patients and families through the process of choosing the way they wish to be treated. :redbeathe

I see that this an older article but recently popped up on my fb site.

I haven't worked in ICU for 20 years but remember these stories with a stark emotionalism.

So sorry for you.

Agree with others that have told you that you did not fail this patient.