Hello all, I am new to this forum and this is my first post. I need all of your expert nicu minds to help a baby who needs to go home! Here's the case history:
Born at 27 and 6/7 weeks
Currently 91 days old (term now adjusted age)
Vented for a very short period
On NCPAP for approx 4 weeks
Then to nasal cannula for 4 weeks
This baby has had a relatively benign course for a 27 weeker. No bleeds, Stage 1 ROP, Tiny PDA, Mild CLD/BPD. Here is the problem -she will not eat!
The neo's wanted an EEG to rule out neuro issues and it showed that she may be have 1-2 second seizures... MRI was normal.
The other issue is reflux for which she is already on reglan and zantac.
She is on a number of diuretics for her lungs which they are now weaning since she is in room air , and phenobarb for the apparent seizures. She has had her NG tube removed 4 times when she nippled for 24 hrs and then the next day we end up having to put it back in. I know what youre thinking but its NOT that she gets tired. She is actually awake during the feed. She will root like shes hungry then latch great but the second she tries to swallow she arches her back and turns away from the bottle crying and furrowing her brow like she is in pain. Mom and Dad dont want a G tube until we can figure out what is going on and to be honest I feel like the doc's really dont know!! This baby has been with us for over 3 months and the parents are really starting to lose faith that she will ever nipple. The frustrating thing is that we know she can do it but then she becomes a totally different baby who refuses to eat. Any ideas???? Any input would be greatly appreciated.
