0 Oct 1, '10
by NRSKarenRN, RN, BSN Admin
please send a professionally worded letter to the 1st eye doctor re concerns over missed diagnosis --needs some updated education. your husbands experience just helped educate rn's on this condition: first time i've heard of it.
info from blepharospasm research foundation blepharospasm
what are the early symptoms of benign essential blepharospasm?
- dry eyes
- light sensitivity
- occasional increased blinking, winking or squinting
- first symptoms are often noticed when driving!
what is blepharospasm?
blepharo means "eyelid". spasm means "uncontrolled muscle contraction". the term blepharospasm ['blef-a-ro-spaz-m] can be applied to any abnormal blinking or eyelid tic or twitch resulting from any cause, ranging from dry eyes to tourette's syndrome to tardive dyskinesia. the blepharospasm referred to here is officially called benign essential blepharospasm (beb) to distinguish it from the less serious secondary blinking disorders. "benign" indicates the condition is not life threatening, and "essential" is a medical term meaning "of unknown cause". it is both a cranial and a focal dystonia. cranial refers to the head and focal indicates confinement to one part. the word dystonia describes abnormal involuntary sustained muscle contractions and spasms. patients with blepharospasm have normal eyes. the visual disturbance is due solely to the forced closure of the eyelids.
blepharospasm usually begins gradually with excessive blinking and/or eye irritation.
as the condition progresses, the spasms may intensify so that when they occur, the patient is functionally blind; and the eyelids may remain forcefully closed for several hours at a time.
what treatments are available for benign essential blepharospasm?
- botulinum toxin injections
- medical (drug) treatment
- surgery (myectomy)
video: diagnosis & treatment with botox of patients with benign essential blepharospasm & related disorders meige's syndrome
oral facial dystonia
let us know how his treatment is progressing!
Last edit by NRSKarenRN on Oct 1, '10