Ruptured AVM

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    I am a student in my last semester of school. I am working on my preceptorship in a local SICU, and had an extremely upsetting case yesterday. A young lady came in a few nights ago after being found unresponsive. She was intubated by paramedics and brought to the ER where it was found she had a massive hemmorhage, likely due to a ruptured AVM. On her CT you cannot even make out the ventricles because her head is so full of blood. Her pupils are 9mm in size, fixed and nonresponsive. SHe is unresponsive to painful stimuli. GCS of 3. She is in full pulmonary edema, as well as renal failure. Her vent tubing is being changed every few hours because it continues to fill with blood. She is on full vent support. She is maxed out on Levo, Vasopressin, and Dopamine. She had a flat EEG, and failed the ear canal ice water test, corneal reflex test, and apnea test. She has been declared brain dead. However, the family continues to hold out false hope that after three days she will magically recover and walk out of the hospital. Today is day three with no change. The family is still insistant that there will be a miraculous change. My question is, am i being realistic in knowing that there is no coming back from this. Am i being too negative because i think this is totally irrational and cruel to the patient, to continue to hold out this hope? I try to put myself into this family's position and think what i would do if this is my family member, but i cant see holding out such hope for long. What do you all think is the appropriate time frame in a case like this, and am i destined to be a bad ICU nurse because i just cant bring myself to be so positive about such a patient? This really hits hard on me, because the patient is my age, and was so young, healthy and full of like just three days ago. Any advice on dealing with this would be great!!!
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    If a patient's heart stopped and they stopped breathing, would you be being harsh for not holding out hope for their survival? It is precisely the same scenario with your patient. Unfortunately, the young lady is dead. She's been declared dead, after scientific test to prove it. There is no hope for recovery. Brain death is not on a continuum from coma -> brain dead... it's just a categorical state... dead.

    It's hard to deal with as a nurse, and it's hard to know what to say to families in this situation. The best thing I have found is to talk to the family about their loved ones in the past tense. Be compassionate, but very clear that there is no hope for recovery. I can't recommend a timeframe - they need to accept it. Were they present for brain death testing? Sometimes it's the only way people will accept it, particularly seeing the apnea test and realizing the patient will not breathe.
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    No they were not present for the testing. The family is unfortunately avoiding the physicians, after being told that there is no life there. The refer to a Bible story in which, I belive they said Lazarus, was risen from the dead after three days. They believe their loved one will be also. They justify their decision by saying that God is only borrowing her to talk to her, and after a few days, he will release her, and she will be as good as new, and will leave the hospital. This is not realistic, but i am having a problem with respecting their religious convictions while still being firm in the fact that there is no hope. This was a sudden thing for them, as the patient was in perfect health before, and the AVM was undiagnosed. I know they need time to process this, but at the same time i feel it is cruel to allow their loved one to lay, and essentially break down. I have never wished for a patient to code, and i dont want to wish that in this case, but i truly do not see the family discontinuing the life support, and in this case, a code would be a truly blessed thing for this person (in my opinion).
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    Has the doctor told them to their face that the patient is dead and showed them the test results? How about a second opinion from another neurologist? It is never easy for the family to accept especially with a young patient. Maybe talk to them about code status should the patient code. Would they want compressions and shocks? At some point you can get the ethics committee involved if you feel uncomfortable and think it will help.

    Just be supportive, talk to the family and listen to their stories about the patient. Past tense is a great idea and might help them "accept" the idea. It is hard for family to see the patient is dead when their heart is still beating. Try doing a neuro exam in front of them.
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    Yes, the physician has explained all of this to them. The have yet to make her a no code. They are not accepting her brain death. Tehy believe that the machines that are keeping her heart and respirations going are only doing so while her brain recovers. I will not really know what happened until i go back next week. Because i am only a student, i feel my hands are tied in talking at any length with the family. As a student, am i allowed to call and ask my preceptor about the situation (because of privacy laws)?
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    Wow sounds like the little gals brain herniated. I am sorry to hear that this situation is happening to you and even worse having her family not accept her death. I say we have many specialities in the health care field and we should use them...

    -Ethics committee. This will meet and clear up familys expectations.

    - Nurse manager- Mine is really invovlved and will talk to upset families. She is so great.

    - Pastoral care

    I am sorry you are dealing with this and as I say try to use second opinions. Also sometimes how physician talks to the family can ease the decison on whether the family withdrawls.

    I remember a family once told a physician that I know nothing my mom wouldn't want to live like that but I can't make the decision. The physician said to the family knowing you want these wishes I will make the decision to discontinue support. It was great hearing the physician talk to the family like this because he is usually really mean.

    I wish you good luck. I would talk to your preceptor about this situation because she may be able to guide you in ways to make you feel better and he or she may have a similar experence

    Good luck
    Kent

    PS. We had a patient on our floor with a huge SAH and herniated. We waited 4 days for the family to come to peace and make their decision.
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    Ethics committee needs to be involved now.
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    We often use palliative care/psych consults too. However, maybe if they are that religious then a pastoral consult would be good. It may help them to hear from a pastor that although the body is there, their daughter has already gone.
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    Just to update, the patient passed away. I will not be back at this job until Monday, so i do not know the details, whether the family decided to withdraw life support, or if she simply coded. I am interested to find out though, and will update when i find out.
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    [color=#74330b][color=#74330b][color=#74330b]i've dealt with this type of issue more times than i care to think about.

    [color=#74330b]i'm not sure if the law varies from state to state, but everywhere i've worked a determination of brain death is a declaration of death and the physicians either may, or are required to withdraw care.

    i'm catholic, and a good reference for people who are willing to accept catholic teaching is
    "why the concept of brain death is valid as a definition of death" from the pontifical academy of sciences http://www.vatican.va/roman_curia/pontifical_academies/acdscien/2008/excerpt_signs_of_death_4l_2.pdf - but know your audience before you refer to it. many people who “expect a miracle” are charismatic christians who may categorically reject anything that comes out of the vatican.
    http://www.catholicnews.com/data/sto...ns/0605285.htm



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