Hospice Nurses...please read my thread

Specialties Hospice

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I'm a RN who has worked in hospitals and acute-care settings for years. It was always too many patients, not enough help/support. I began to feel anxious about going in each evening feeling that the license for which I worked so hard to achieve was on the line. I would leave in the a.m. (usually well after my shift end time to catch up on all of the charting, reporting, etc) and feel that I did what I could but it did not meet my goals for optimal patient comfort - actually it barely met my minimum. My prayer used to be simply that I did nothing unknowingly to hurt anyone during my shift and that no one would die on 'my watch'. Although I was well liked and my reviews strong, I still felt that I was being held back as a nurse and as a person wanting to give my loving care to others and not being given the possibility of doing so. The acuity of the patients gaining admission to hospitals was higher - much higher - and the staffing was unsafe and unrealistic. I went into nursing so I could make a difference and this did not feel like making a difference...it felt like shift-to-shift survival.

As I was losing my 'sparkle' as a nurse, friends and family began to notice. One of my friends was a nurse working in a completely different field than hospital nursing...it was Hospice/Palliative Care. I had some exposure to this field during a clinical orientation 10 years or so previously. I remembered that experience as being one of the most loving nursing environments I had ever witnessed. When my friend told me about a position with a Palliative Care, I thought I'd look into it. What I found amazed me and disintegrated all of the hospice 'myths' that I'd heard. Hospice was not about giving up hope - it was about regaining hope for a better quality of life for however long that was. It was not about speeding the dying process along...in fact, we 'graduate' patients from hospice when they do not meet the requirements for this specialized level of care (and most times it is due to our skilled interventions and PT/OT, Registered Dietician interventions). Hospice is not a place, it is a philosophy of care. Hospice and Palliative care teams go to hospital ICUs, SNFs, ALRs, and most times to our patient's homes.

Once I glimpsed the difference of how nurses were viewed in this discipline I was ready to begin my journey. I was given extensive orientation to this field while working on the Inpatient Care Center (kind of like the ICU in a hospital. Available for high level/acute issues until effectively managed). The Medical Director was one of the finest and most patient instructors I've ever had. He appreciated my strong clinical skills, explained to me how to approach specific symptoms and educated me on the pathophysiology of many disease processes. He championed all nurses in our organization to be honest with our patients in our assessments, to be prepared to consult with the Physicians as an equal member of our team and to always advocate for our patients who many times could not advocate for themselves. I was blown-away! I had time to sit with a distressed patient and really assess what was going on but not just from a physical standpoint...from an emotional, spiritual, and relationship point of view as well. I had Counselors, Chaplains, C.N.A.s, dieticians, PT/OTs/RTs - all which were available to me and my patients around the clock and which were just as involved in the care of the patient and familiy. It was a loving, caring, compassionate embrace of the care team, by the care team (which includes MD, RN, MSW, Chaplain, C.N.A., Volunteers and ancillary staff i.e., pharmacy, DME supplier, dietician, massage therapy, etc). I worked on the Care Center for a while and loved it. Then I decided to move to having my own patient load in Home Care settings and I really loved it! My kids got busier as they got closer to their teens and I went to After Hours (Nights).

Our family moved a few years ago and I asked my Nursing Educator which was the best hospice to work for (there were about 18 small and larger hospices at the time). Without missing a beat, she told me that XXX Hospice was strongest in their care commitment and support of patients and employees as she had worked with them on several hospice-improvement projects. I visited their website and filled out an application. Within a few weeks, I was hired on as an After Hours RN. Even with a fair amount of hospice nurse experience under my belt, XXX Hospice provided me with more than ample orientation (it was really the paperwork/processes I needed a leg-up on and by the beginning of month TWO of orientation, I was antsy to get out on my own...never had THAT experience in the hospitals when orienting to a new unit, I'll tell you!). I've been working at there for over 2 years and I've never been happier in my nursing career. I am treated very well, with benefits and compensation that are well above anything the hospitals could offer. But most importantly, I am supported. Everyone looks out for one another. I know that sounds corny, but it is true and it makes my heart sing. I know now that death is not failure, that it is a part of life part and a journey each of us will eventually make. I know that relationships define us and are all that matter when life is winding down. And I've learned that it's OK to care about patients and their families and sometimes that's the price of being human and being a nurse and that I'm willing to pay that price in exchange for the uncountable blessings I receive each day I work in this field.

Thank you for reading my thread. I hope to hear from those who felt a tug at their own nurse-heart strings.

Truly blessed in this work,

Mary

Specializes in PICU, NICU, L&D, Public Health, Hospice.

Yup...for many hospice nursing is a calling as much as it is a career or job. It is that way for me. I was inspired by the hospice nurses who cared for my young friend as she said goodbye to her family. I fell in love with the families and patients who are so grateful for the care that we provide. I am challenged by the autonomy, maintaining the balance between my Nurse Practice Act/scope of practice and rapid delivery of effective care for symptomatic patients. THIS is how I will spend my remaining years in nursing, and ultimately I hope, the remaining months of my life...in hospice.

Specializes in Certified Diabetes Educator.
Charlee, I am a BIG believer in being where you are meant to be, right now. I was meant to write that blog and you were meant to read it. Where to start to get into Hospice nursing? Find a non-profit hospice (I've worked for both and I will ONLY work for non-profit hospices going forward), preferably one that has its own inpatient care center (think ICU-level care for terminally ill/hospice patients). Many times you will not see an advertisement for hospice nurses though they are in heavy demand most of the time. Most of our nurses come knocking on our doors -either because they've worked with us while caring for patients in hospitals or SNFs or because they had someone they loved in hospice care and got an up-close look at what we do. It is perfectly fine to come into hospice care without having worked in hospice previously. I'll tell you what we look for...a nurse with strong clinical skills who can effectively paint the picture of what they are seeing at the patient's bedside; a nurse who has confidence in his/her own assessment skills and is not afraid to advocate for what the patient/family states are their goals for comfort and being able to communicate that goal and collaborate with Physicians to help meet it; a nurse who understands that we might see things that are a bit unexpected at times but is able to look into the eyes of the person you are treating and understand this could be your mother, your father, your child...yourself; a nurse who understands the fragile population whom we serve and who is OK holding the hands of the pt/family to help them understand what is happening and what we can do to help. I wear a button from the hospice I work at in Denver that says, "Actually, there is something more we can do". We know we're not on the curative side anymore but we have tremendous hope for a better quality of life (whatever that looks like to your patient) for however long that life continues. Go in and speak with the HR department of a hospice near you and tell them that your heart is telling you that this is where you belong. It won't be taken as sappy or smooth-talking...it will be understood from your hospice nurses' heart to ours. You are the nurse we want to join our hospice family of providers. And, yes, we do have special certification to demonstrate our expertise in this field but typically we encourage hospice nurses to work in this field for a few years before they begin down this road. Many hospices provide cash awards for obtaining this certification (ours offers $1250 award) as it is to our credit to be able to say that 85% of our RNs have been certified as experts in the field of Hospice & Palliative Care. So many wonderful experiences are ahead of you and you sound as ready as I was for a change. Someone is spiritually tapping you on the shoulder, my dear. It's been my experience to listen to that gentle advice and everything will fall into place around you.

Just wanted to update you. I applied to a local non-profit hospice organization. I will be PRN for the time being, but that is okay. I'm getting my foot in the door. I go tomorrow for the urine test and all those forms to sign that is part of a new job. Thanks so much again for your post. You got me motivated and moving in the right direction. I can't thank you enough.

Charlee

Specializes in Hospice/Palliative, PACU, OR, Med/Surg.

Congratulations, Charlee!:yeah:

Ask questions, watch the providers who have worked in this field for a bit and give yourself time and permission to learn in your own way. I am excited for you and the many families that you will undoubtedly touch in very real and sacred ways!

Specializes in ED, ICU, PACU.

My last day on that floor was earlier this week. I'm starting as a hopsice RN later this month. Despite the relief I have just in knowing that I won't be on the floor any more, it is rather frightening to leave the only nursing job I've ever known for something so dramatically different. Your post helped to serve as confirmation that I've made the right choice.

Trust me. You will not regret your decision. I started as a hospice Case Manager a little over a month ago & don't regret it one iota, even though I probably work for one of the lower quality hospices. Once I get enough experience and pay my current hospice back (speaking in terms of labor and effort for them for the training they have provided me), I will move on to a place that does it right.

What I think I am trying to say is that the worst hospice is far better than the best staff job because no one can dictate what you do for the patient and their families-you will understand what I am talking about once you get your own caseload.

BTW, at one month into this, I already have a caseload of 6-8 patients and have had to train newer hires, without even really knowing what I am doing, myself. Be sure that you don't let them rush you because that is the only stress that I feel now. No more conflicts with other nurses because most of us watch each other's back and pick up another's slack. No more having management breathing down my neck, micromanaging because, all that matters now is that I submit the paperwork so the hospice can get paid their per diem. No more threats of getting fired because the hospice NEEDS nurses and is more afraid that I would leave to go to a better position. Bumping heads with other disciplines is over-I now lead an interdisciplinary team and collaborate with them to optimize patient care. But, most rewarding is that I can get to know a patient and their family to treat them in a holistic matter---although, I find myself sometimes being more of a psychologist than a nurse. And, I get to wear normal people clothes :D (using the scrubs for house clothes now).

Enjoy, you won't regret it even if the hospice isn't one of the higher quality ones.

My story is similar to yours, and I too love hospice work, it's my calling...I have been a hospice case manager for two years now...What I love about it most is the quality of people I work with whether it's our medical directors or HHA, they are outstanding supportive people..There is a energy of support, and love for each other that you won't find anywhere else...

Currently I work for a not for profit health system. I have been frustrated by our increased case loads,higher acuity, and long driving distance. I drive up to 100mi in one day...I have been finding myself asking the same questions I did when in the hospital..Am I providing the quality of care that my patients need and deserve?..I find myself feeling more and more that I am falling short, due to the demands, and constraints of my job..

I have been thinking about looking into other hospice's but I love my co-workers..I feel very torn..

Specializes in PICU, NICU, L&D, Public Health, Hospice.

Please don't let your "calling" to hospice cause you to submit to misuse by your employer. While not-for-profit hospices are often more employee friendly than for profit agencies they are not immune to bad management or financial concerns. Do try to be proactive with your management about your concerns...nurses are problem solvers...we see issues and we develop ideas to resolve them...put that skill to work for yourself and your employer...generate discussion, throw ideas on the table, make suggestions, ask questions. IF your employer is not open to that sort of interaction and the current trend of too much work, too many miles, not enough support continues then you should look for other employment. As nurses we too frequently allow ourselves to remain in unhappy, sometimes abusive employment situations because we don't want to negatively impact our co-workers or "abandon" our patients. Bad idea.

Thank you for the advice...We are fighting and advocating for our patients in a very professional manner, and bring options to the table..most of the nurses are pretty tired..and losing hope..It's a large institution with too many cooks in the kitchen..I am looking else where, but again I love my co-workers, and I want to remain hopeful for our patients..

Specializes in Hospice/Palliative, PACU, OR, Med/Surg.

If only you lived in the Denver area....sigh....

Hang in there, kiddo! Sometimes it's the squeaky wheel that gets the oil.

:1luvu:

Specializes in Geriatrics, LTC assessments, insurance.

I am so happy to have found this thread. I've been reading these boards for about a year now, and just officially decided to join in.

Mary...I could have written almost the same thing! Wow...When I worked in Med-Surg, I had a patient load of 10-14 patients. When I worked in a nursing home, it was 1 RN and 42 residents. I felt completely overwhelmed. I spent lots more time doing paperwork and giving out meds than I did assessing and caring for my patients. It was depressing. When I was working in the nursing home, I felt that my residents were not as safe as they should be with only 1 RN. I also had a very negative/bad experience when I almost worked in L&D. I never completed my orientation. During my 4th week of orientation, I was left alone in the triage area because the unit was short-staffed. I told my preceptor and nurse manager that I was very uncomfortable with this, and did not feel competent at this point. They said, "Oh, don't worry about it. It's just triage." Just like that. They displayed a very cavalier attitude about it, and seriously didn't care. I had never delivered a baby before, and had observed less than a handful of deliveries at that point. Well, a woman come into triage in active labor, 5th term pregnancy. I paged the resident who told me, with a terrible, sarcastic attitude, that she couldn't help because she was in a class. I paged her attending who never responded, and then I didn't even have time to page anyone else. I ran to get the emergency delivery kit, and God must have been watching over me...I saw an attending outside the locked unit. Had no idea who he was, but I ran to him, begged for help, practically crying I was so nervous. He ran in to help me, and baby was born less than a minute later. I resigned that night.

I worked hard to get my license, and I felt that it was in jeopardy sometimes. I left the workforce to stay home, and I had 3 children. Well...fast forward 10 years later. I am pursuing my BSN part time, and would like to go back to work per diem. Eventually, I would like to go back to work part time. I am seriously considering hospice, because I have always felt drawn to patients who were terminally ill for some reason. I am an extremely compassionate person, and I really feel that either hospice or some other LTC is my calling (provided the ratio isn't normally 1 nurse to 42 residents again!!)

I live in Central NJ. Do any of the seasoned hospice nurses out there have any advice or suggestions for me, as for how I should "get back into the groove?" I honestly lost some confidence before I left the workforce after those experiences, but I have put that all behind me now. I want to do what I was born to do, and that's to work as a nurse once again. I would really appreciate any thoughts, suggestions, advice, or comments. Thank you.

Nancy

Specializes in Hospice/Palliative, PACU, OR, Med/Surg.

Nancy, thank you for sharing your experience...what a terrible situation you were dropped in by other members of your 'team'. I've been in similar places myself when I worked in the hospital but not quite as dire. It's scarey, it's unsafe and frankly, it's traumatizing.

I don't live in New Jersey but my advice would be to go find some non-profit hospices in your area and make sure they have their own care center (those are the best situations from my own experience). Might be worth your while to volunteer as an 11th hour (when patients are very close to death but have no family to stay with them or the family needs a hospice presence while they hold vigil with the dying patient). This will get you 'in' and allow you to see what we do a bit more closely. If you connect with what you see, you could take it from there with the hiring manager who will likely be thrilled that you're a RN and have shown real interest by volunteering first. It might help skirt the issue of not having worked actively as a nurse for a bit as you'll have established a report with the organization.

Best of luck to you and let us know where life points you next.

:redbeathe

Mary

Specializes in Geriatrics, LTC assessments, insurance.

Mary, thank you so very much for your reply, and your excellent advise. I appreciate it! I'm going to do exactly what you suggested!!

Nancy

I too am so glad I happened on this post today. The hospice nurses that cared for my dad 5 years ago when he passed are what have inspired me to go back to school to get my RN. I am almost 33 and I worked for 8 years as a medical coder. I spent most of my time chart auditing. It was always so interesting to me and I often found myself wanting to be on the front lines as opposed to behind the scenes. My family's experience with hospice was so amazing; it sealed the deal for me... I want to be a nurse! I've been a stay at home mom for about 3 years now and have slowly been working on getting all my prerequisites to apply to my local nursing program. I'm hoping to get accepted into the fall 2010 class.

Do you have any advice for soemone just starting out like me? I know that I will need some time in something like a Med Surg unit to get some experience...

And, how much does your own faith('s) play a role in your work?

Thank you all of you for the work that you do. Know that you touch lives in such an awesome way and make something that can be so very painful (physically and emotionally) and scary an amazing experience. It sounds weird to those who haven't been through it... but I rejoice being with my dad when he passed. It strengthened my own faith and I will treasure that memory forever. I believe I owe much of that to hospice. :redpinkhe Thank you!

Lindsey

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