Patients who have changed our lives

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    I've been an LPN for 13 years and just graduated with my ASN this past May. I've been wracking my brain trying to find that one patient or patients that have changed my life for better or worse. For the life of me, I can't think of just one exactly which is weird.

    Patients who have changed our lives

    There is one person though who taught me through the way he viewed life that we can't control how a person will live no matter how much information and teaching we give. Johnnie was a very brittle diabetic; his blood sugars were very rarely under any semblance of control.

    The only way they ever were was if his mom controlled his diet and prepared his food. Johnnie couldn't cook to save his life, though he had been taught at the School for the Blind, yes he was blind too though not due to diabetes, but glaucoma. On top of everything else he was only 4' 11", a height caused by medication he was on as a child to treat aplastic anemia. Johnnie wanted to live life to the fullest, and to him this meant living on his own. The problem with that was his diabetes.

    His blood sugars would range from 30's to well over 900. He hated anyone telling him that he needed some supervision so that his blood sugars could be controlled better. After years of fighting, and the fact he was now in his thirties he finally upped and moved to a town almost 2 hours away.

    There he found living on his own to be difficult when your only means of income is your SSI check. His mom couldn't get him to also understand that having a steady job would be a good thing, but he was afraid to lose SSI.

    I tried to make him understand this either, but he had this funny idea that people owed him....whatever he wanted. He wouldn't listen to what anyone had to say if it required him to change what his plans were, or what he thought was better. He had many dreams, but for some reason thought he could attain them with no work whatsoever. He wanted to be a DJ and collected records and made mix tapes into the wee hours of the night. But when it came to taking care of himself, he would do the best he could...but it definitely wasn't what he needed.

    He needed to check his blood sugar four times a day, and have insulin shots prepared. Because he didn't want to be considered home bound he couldn't get a home health nurse to do these tasks for him, since remember he was blind. I worked with him, his mom worked with him and neither of us could get him to at least move closer to home. He could still live on his own, but at least he would have someone there to check his blood sugar, set up his insulin, make sure he went to his Doctor's appointments, etc. He always said that if he developed a diabetic ulcer that got infected to allow him to succumb to the infection, to not allow any amputations. His mother agreed to this, understanding his reasoning that he didn't want any more handicaps.

    Today Johnnie would have been 48 years old and tomorrow is the 8th anniversary of his death. He died in 2000 from kidney failure secondary to diabetes. I wonder everyday if he would still be alive if I or his mother had been able to convince him to take his health seriously. But he always lived as if he had no time. He even told me once that he didn't think he would live to be 40.

    We did not know however that it would be a self fulfilling prophecy. I remember arguing with him to give dialysis a try, to get him healthy enough to be considered for a kidney transplant. I actually grew angry at him, something I have done with patients of mine but have never shown. I could show my anger to him though; he was my older brother after all.

    I was a relatively new nurse, and had never worked acute care up to that point so I really didn't know how bad he really was. From the time I found out he was really sick to his death was a week. What I remember of those times was the kindness of one nurse on the hospice unit, who instead of saying he had requested no information to given out to his family about his condition, allowed my mom to find out how bad he was by putting the phone up to him.

    He couldn't answer, so they knew he was really, really sick at this time. Without this one nurse, we would never have known he was actively dying. Our parents were able to see him one last time, and were going to bring him home to die. But, we think he heard them, as he died the night before they were going to transport him home. Didn't want to move home even at the last.

    I learned that no matter how hard we try, no matter the information available to us to give our patients. It's up to them to actually use the information given. We can advocate as much as we wish, but only if the patient is willing. My brother had the best doctors, and nurses telling him what he needed to do. But he felt it would "restrict" his life too much. I have run into many patients like this over the years. All I can do is try my best and hope that one of them has heard what I am trying to teach them and make the change they need to do. It is all any of us can do actually.
    Last edit by Joe V on Jan 11, '15
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  3. by   dylansmama
    thank you for sharing your story....
    I agree with you that patients want to live their life how they want to live it, and despite our best efforts, they don't always listen. I just figure they're adults, they can make their own choices. Good luck to you
  4. by   mynika
    I lost a brother to diabetes much the same way. He had to live life on his terms or not at all. He died at age 49. Thanks for the article. It reminds me that they do have that right.
  5. by   raekaylvn
    I'm brand new to the nursing field. Just graduated, just passed boards...
    But I did take a job as a camp nurse this summer. Working with 250+ 5th and 6th graders a week. Some of them absolutely amazed me.
    I think the one that I remember most was a little 10 year old girl. She was on a lot of different medications, and was born with obvious birth defects. Her hand was split in the middle, and she had 2 fingers on each side and she was born without a leg, so she's had a prostetic leg for 10 years. I never once saw her handle life and camp with anything but grace. If kids looked at her differently, she didn't care. The best part of the week was when she sprinted up to the top of our huge hill and was there before any other child.
    Being different can be a blessing. And she never let her circumstances control her life. I hope I can always be like that. Making the best out of every situation and accepting what comes my way.
    Last edit by ElvishDNP on Aug 25, '08 : Reason: removing html script
  6. by   WildcatFanRN
    It is hard sometimes to remember that no matter what we do, the patient ultimately is the one who will decide what he/she will or will not do. All we can do is give the information as accurately as possible and hope to get through. We are not always successful.
  7. by   ElvishDNP
    Adding to the above, maybe the definition of 'success' depends on the patient. Just a thought.
  8. by   WildcatFanRN
    Quote from Elvish
    Adding to the above, maybe the definition of 'success' depends on the patient. Just a thought.
    Exactly. Though in my brother's case, I wish he'd been more compliant. But to do so, he would have had to compromise with our mom and he didn't want to do it.
  9. by   ElvishDNP
    I know the feeling - if they are adults there is only so much we can do.
  10. by   jan67
    Thank you very much for sharing!
    Good luck to you!
    God bless!!
  11. by   WildcatFanRN
    Thank you. Stange I wrote this on the anniversery night of his death. I am amazed on how angry I still am at him sometimes, though I know he lived the life he wanted to. I keep asking myself, "if I had been in KY instead of AZ, could I have changed anything?" I know the answer, but part of me keeps asking anyway.