Help me with your experience...

Nurses General Nursing

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In my spare time (what spare time?), I write. A little. 10 years ago, I wrote a book (took me more than a year) and got some very nice rejection slips, but never was published; the rework it needed (too many characters, plot a bit too complex for the romance market -- that's what the rejection slips agreed on) was just too much and then life got in the way. :) Anyway, a learning experience.

Anyhow, now I am getting the urge to write ANOTHER book and will soon be doing an outline to work from (right now it is coalescing from the fog).

My characters always come to me first. They seem more real to me every day at this point (plot is still a bit vague, but it's coming).

The one I need help with is a wheelchair bound 9- to 10-year-old boy with an assistance dog.

What I need is a diagnosis, then I can start reading up on it for the book. The little guy in my head doesn't have much voluntary facial expression, he's smaller than average for age, has a bit of arm muscle control, and he's able to manipulate an electric wheelchair. Uses a mouthstick and keyboard with electronic voice to communicate. He also has average to bright intelligence.

If you've worked with a similar child, how do family and neighbors interact with each other and the child?

If anyone's seen an assistance dog in action, I'd like to hear about your impressions of that. What was it like? How did the family integrate with the dog? How did the dog interact with the helpee as opposed to other family members? (I realize I can get this from the assistance dog sites, but I KNOW you all, and I don't know any of them yet :)).

So...if anyone has any ideas? (I suspect it'll be 5-6 years before I get this done, but you never know...and if I do get it done, you guys can read it first).

I am getting lots of good ideas here -- I do want something that most people aren't familiar with, something (probably) congenital that the family has been dealing with from day one. The independence issue does figure in the plot (thus the assistance dog). CP and MD are the two I'd originally considered, but OI and MG sound very interesting; both would work in different ways. I will have to look at the progressive infantile spinal muscular atrophy; that's one I've never even heard of.

What do you write, Reb?

I like the life long dealing with it idea. Though not wc bound my son is mentally and physically disabled and believe me there are all kinds of angles people dont usually think of in dealing with these things. Good Luck in your writing. The more realistic the better I think

I write very self-absorbed, introverted, first person, angst-ridden, disturbing stuff.

It is my goal to make my reader uncomfortable in some way. I'm usually successful at that.

My current project is a series of vignettes reflecting the inner thought processes and external actions of a range of people from the slightly pedophilic to the frankly psychotic.

My chief influences are Barry Gifford and Bret Easton Ellis. I don't write like a girl at all.... I write as starkly as possible, with few superfluous words and/or descriptions.

Angel, I PMd you.

Reb, your writing sounds fascinating. Are your works available for reading?

I might be able to rustle something up for ya, if you're in the mood to be punished. ;)

Originally posted by researchrabbit

. I will have to look at the progressive infantile spinal muscular atrophy; that's one I've never even heard of.

Life expectancy in infantile SMA is infancy. It progress quickly to respiratory muscles and causes death.I have had several patients over the last 25 years with this.

I guess that one's out then (thanks Mattigan).

Reb, punish away! (from the way you write your posts I bet there's no punishment involved; just very good writing) :)

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