We have a young patient who has infarcted most of his bowel - there is about 3 ft left. I work in ICU and so have no idea how patients with this sort of disability manage at home. I know he will be on TPN for the rest of his life but what sort of quality of life do patients with short bowel syndrome have???
Feb 12, '04
My dad has short bowel syndrome, but has not required TPN to this point (it's been about a year since his last surgery that left him with about 3 feet of bowel). He is 60, and aside from having a heck of a time figuring out what he can eat (he also has Type 2 diabetes and high cholesterol) he is doing fine. He gets tired more often than he once did, but that could be age related. He is still able to work as a self-employed attorney. He hasn't had a massive weight loss or anything.
Nov 16, '04
This is interesting, I just read an article on emedicine about small bowel transplantation, has anyone ever seen patients with transplanted bowels? Did they live very long?
Nov 17, '04
there is a lady from pensacola, fl who had one a couple of years ago (2001). she did have some difficulty along the way, but made it through. i saw her in the hospital one day when i was working (she was visiting someone) and she looked great!!
she was at university of pittsburgh medical center in pittsburgh for her surgery.
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