Fibromyalgia - page 25

What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More

  1. by   BabyRN2Be
    Quote from smiles04
    ******to the lady with all the pain and fibro ARE YOU HAPPY? IF NOT TRY LIKE HECK TO CHANGE THAT. ARE YOU UNHAPPY AND THINK YOU ARE HAPPY LOOK WITHIN. I THINK THE SX ARE REAL FOR YOU BUT YOU HAVE TO WANT TO CHANGE SOME THINGS ALL THE DOCTORS AND MEDS WILL NOT HELP YOU IF YOUR STILL UNDER LOTS OF STRESS OR ARE NOT LOVED. IT SOUNDS LIKE YOU ARE BUT JUST EVALUATE. GOOD LUCK AND GOD BLESS YOU PRAYER IS AMAZING TOO YOU PRAY AND I WILL TOO. SMILES O4
    Smiles04,

    I'm just wondering if you are referring to me. I had noticed you referenced one of my old, old posts (from maybe about 3 years ago). You had mentioned "the lady with all the pain and fibro." It seems like there are many people following the thread the might meet this description.

    If you are referring to me, as I had said, I wrote that post over three years ago and many things have changed in my life since then (got married, now expecting a baby). When I wrote that post I was not depressed and the pain is manageable. If I came across that way and I surely hope it didn't sound like that, I was trying to make a point and differentiate between those who have fought "fibro" and go on with their lives and those who have fibro, say "there's nothing I can do about it, poor me, just show me to the Demerol and I'll be on my way" types who visit the ED, KWIM?

    I'm not saying this is not a real disease. I do have a problem with those who use the dx as a "catch-all, wastebasket" type illness, throw meds at it and don't investigage further, as well as those who use it as an excuse not to do anything in life. There are treatments out there; however, it's something you have to work with. It's not a diagnosis that you can take a med for and the symptom will disappear. You definitely have to work with it. Some people (NOT ALL) aren't willing to do that and would rather have a medication do the work.

    There is a difference between the groups of people, and I wanted to try to make that point. This thread has really evolved since I had made the original post and I just wanted to clarify.
  2. by   Jo Dirt
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
  3. by   BabyRN2Be
    Quote from motorcycle mama
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
    MM,

    Are you being serious?? If yes, there are some 14 pressure points they look at to see if you meet the criteria of fibromyalgia. If you have pain in half of them (or something like that), then that's what diagnosis you with fibro (from what I understand). Along with generalized muscle soreness in main muscle groups. So, if all that you have is soreness in your shoulders, you don't qualify for the fibro boat which has sailed. However, you mentioned ssx of severe anxiety and depression. That may get you the check all on it's own! I'd say give it a whirl and see what happens. Couldn't hurt. After all, why not have the court systems backed up to match the medical services backup? The two would go hand and hand. I'd say you have an excellent chance! Go for it!

    Disclaimer: Most of this post has been made tongue in cheek. If you are offended, I'm sorry. And even worse, if I've offended you, MM, I'm sorry if your post was not made in jest. You seem like the type of person who wouldn't stop working with fibro.
  4. by   chewchabuckala
    I know alot of people that will say....Oh I have that, when you mention you have fibromyalgia. Maybe if that was all you had, alternatives to pain medication would manage it. I use to try relaxation, aroma therapy, warm soaks in the tub, music, and distraction. It helped for quite a long time. It never did go away, and after thyroid radiation is when every body system started to go haywire. Someone asked if I was happy, stressed out, depressed. I am in a very loving relationship with my husband of 10 yrs. He has been my rock. He loves me as much now, if not more, as he has seen me go from a firey, fun loving, hard working person, to a chubby, debilitated person. He still keeps me laughing, and is their to help me do the ADL's that I now need help with. He puts no pressure on me as far as meals, laundry, or anything that on bad days just have to be let go. He will often just know by looking at me that I need some TLC. I loved my job, I miss my coworkers, and I had a great position that I hated to let go. I mourned the loss of my normal self for about two years. Then when I became worse, I realized how lucky I had been at the "mourning" phase of my earlier unplanned retirement. I feel sorry for anyone that has fibro. The trigger points I have will bring tears to my eyes, and often in the colder months I get chronic costalchondritis, which I go and get injections of prednisone between my ribs. You don't go through that just for the fun of it. The rib pain makes it hurtful to breath, so deep breathing exercises are a must. You just take your meds, wait till they kick in and do the exercises. In my opinion, I do not see how anyone can work a rigorous, stressful, multi-tacting job, especially nursing, when your recall of experience and schooling are constantly being neccessary. Medications do impair your ability to recall, reaction time, and they do make me sleepy. I get brain fog also. Cutoes to you if you can do it. Everyone is differant. I worried about patient safety, and was worried about working while impaired. To me my license was worth more than anything else. I felt that if I ever did get better, I would be able to go back. I have been told by my specialists and MD that's not going to happen, as I continue to deteriorate. I'm to young for this, but just like cancer, it crosses all classes of people. It does not discriminate. Again.......I am a firm believer that long term stress, and stressor can either kill you or disable you, as their are some things that are worse than death.
  5. by   teeituptom
    Quote from motorcycle mama
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
    This is interesting
  6. by   Miss Chybil RN
    Quote from motorcycle mama
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
    Are you disabled?
  7. by   caroladybelle
    Quote from motorcycle mama
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
    Are you disabled?

    I was treated for cancer when I was in my late teens. Occasionally, this comes up in conversation. And invariably, someone will ask, "Why aren't you on disability?".

    Because I am not disabled.
  8. by   Nightcrawler
    I have found that there is such a stygma behind fibromyalgia that I stopped telling anyone that I had it. None of my current docs know that I have this old diagnosis. I self treat by trying to limit stress as much as possible, and ensuring that I get adequate sleep.
  9. by   I love my cat!
    Quote from motorcycle mama
    I have all the ssx of what they call fibromyalgia: extreme fatigue, soreness in the shoulders (I've had that since 2nd grade)...etc. but I believe it is due to severe anxiety and depression I have suffered with most of my life.
    So if I get officially diagnosed with this does that mean I can get a disability check?
    I am sorry about your chronic pain, depression and anxiety. Life is hard enough and to have to deal with that on top of it is awful.
    You may qualify if your physical pain and/or depression and anxiety prevents you from doing any type of work. SSD can be a very, very long and frustrating process rough, so be patient. I know that in California, cases can take over 2 YEARS to be approved.
    Many people lose everything that they own in the process, including their self-esteem and dignity. Patients that I have dealt with have told me it was the most humiliating thing they have ever gone through.
    Below, I have listed the US Governments criteria used to qualify one for disability (to add, from what I understand, disability rarely pays more than $1000 a month)....but I suppose it is better than being disabled and getting nothing
    I have a lot of patients that are on disability. They appear to be fine physically, but emotionally they are severely impaired.

    1 Are you working?
    If you are working and your earnings average more than a certain amount each month, we generally will not consider you disabled. The amount changes each year. For the current figure, see the annual Update (Publication No. 05-10003).

    If you are not working, or your monthly earnings average the current amount or less, the state agency then looks at your medical condition.

    2 Is your medical condition "severe"?
    For the state agency to decide that you are disabled, your medical condition must significantly limit your ability to do basic work activities--such as walking, sitting and remembering--for at least one year. If your medical condition is not that severe, the state agency will not consider you disabled. If your condition is that severe, the state agency goes on to step three.

    3 Is your medical condition on the List of Impairments?
    The state agency has a List of Impairments that describes medical conditions that are considered so severe that they automatically mean that you are disabled as defined by law. If your condition (or combination of medical conditions) is not on this list, the state agency looks to see if your condition is as severe as a condition that is on the list. If the severity of your medical condition meets or equals that of a listed impairment, the state agency will decide that you are disabled. If it does not, the state agency goes on to step four.

    4 Can you do the work you did before?
    At this step, the state agency decides if your medical condition prevents you from being able to do the work you did before. If it does not, the state agency will decide that you are not disabled. If it does, the state agency goes on to step five.

    5 Can you do any other type of work?
    If you cannot do the work you did in the past, the state agency looks to see if you would be able to do other work. It evaluates your medical condition, your age, education, past work experience and any skills you may have that could be used to do other work. If you cannot do other work, the state agency will decide that you are disabled. If you can do other work, the state agency will decide that you are not disabled.

    I hope this helps. Here is the site to go to if you want to apply:
    http://www.ssa.gov/
  10. by   teeituptom
    I know a nurse who got a handicapped sticker just for her fibromyalgia

    simply amazing
  11. by   Miss Chybil RN
    Quote from teeituptom
    I know a nurse who got a handicapped sticker just for her fibromyalgia

    simply amazing
    What I find simply amazing is people in the health care field who are oblivious to the debilitating pain suffered by others.

    For all those who happen to "believe in" fibromyalgia, I have a little update for you. If you haven't heard, Lyrica has recently been approved for treatment of fibromyalgia. Lyrica is commonly used to treat shingles pain, pain associated with diabetic neuropathy, and epilepsy. You can Google Lyrica to read about the study in which fibromyalgia sufferers who were treated with Lyrica experienced a 50% decrease in their pain level.

    Not to sound like a drug commercial, but not all people can take Lyrica. Some people gain a lot of weight while taking it. Others suffer from edema and must stop taking it. I have been taking it for over a month now and find it nothing short of a miracle. My pain level has been so reduced I have been able to start practicing yoga almost every day - which in itself helps my pain level. My life is in order. My house is clean. I WANT to socialize and I'm able to sincerely laugh and have fun.

    I feel like a new woman. I feel young again, like my personality is coming back. My depression is gone, my overwhelming exhaustion is gone. Now, that I have fairly little pain, I realize just how much I was hurting before. I hurt so bad for so long, I thought is was normal. I couldn't even wear my bra around the house, it hurt so bad! A walk through Costco was excrutiating. (Was I on disability during my over 7 years of suffering? No. But, I did earn a Bachelor's degree and am started on my second one. This is the first medication my rheumatologist has given my for my fibromyalgia, besides Lunesta, and I've been going to see him for over three years. So see, we all aren't drug seeking, $100-a-month-check seeking malingerers.)

    I have gained three pounds, and I am already overweight, but I am trying to keep a lid on the pantry! The medicine makes me very hungry, sometimes. Doing a little research on the web, I find many people will not take the medicine because of this side-effect. I'm hoping it won't overtake me. I love how I feel right now. I can do things without it taking a Herculean effort and without pain!

    It is becoming more and more evident that fibromyalgia is a neurological disease. Now, that the compass is pointed in a particular direction regarding the study of this disease, I'm very hopeful they will find a cure, or a treatment that everyone who suffers from the disease can tolerate. In the meantime, it would be nice for those who are unfamiliar with fibromyaligia and it's effects to spend a little time researching it, talking to their patients and friends who are afflicted by it and keeping an open mind to those who suffer.
  12. by   Miss Chybil RN
    For some reason I can't edit my previous post so I'm just going to add this here. Here is a nice article for those who want to know more about fibromyalgia, the abnormalities in the spinal fluid of patients afflicted by it and treatment with Lyrica.

    http://www.mysanantonio.com/salife/h...a.1e7296b.html
  13. by   tammyc-lpn
    I am hearing a lot of people say they have it also, sometimes I wonder if some of them are using it as a sympathy tactic. The ones I hear complaining about it are also ones that don't work and depend on a spouse for full support. I am 45 yo attend school full time (4 days a week) and work 2 or 3 days a week depending on the week I hurt all over every day, and the stress well all of u who work and attend school know about the stress. So what are we to do. Some of these people are applying for disability.

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