Hello, I am working on a project focusing on improving inpatient care for people with developmental disabilities, and was wondering if any of you DD nurses had any input on the kind of care your patients have recieved in the hospital (with specific examples if you have any). I feel that much of the research and individualized care for this population is focused on an outpatient, group home basis and my patients with DD are not always followed very well by their group home staff/nurses. Do you feel that staff nurses have any education on how to care for this population? What kind of educational programs would you like to see and who could you see doing it? And do you have any ideas for how to improve the communication between group homes and the hospital? In my experience people from group homes will always have a staff sitting with them, but this staff member rarely works with the person at home and therefore doesn't know them any better than the nurses do.
This is not a formal survey by any means, honestly half of the reason I am asking here is because this is an area that I have a lot of interest in and in the far far future I would love to be involved in providing more formal education to hospital nurses in this area (I'm graduating in 2 weeks so as I said, that won't be happening any time soon). Anyways I would love to hear what your thoughts are!