Published Nov 29, 2008
marachne
349 Posts
I just found out about a project called Engage with Grace: The One Slide Project
It is about taking the time, with family, friends, and all who you love to answer just 5 questions about your desires at end of life. The idea is to get the conversation going.
The following is a quote from the Engage with Grace Project. Please go their site, http://www.engagewithgrace.org, download the slide, answer for yourself and engage with those you love!
We make choices throughout our lives - where we want to live, what types of activities will fill our days, with whom we spend our time. These choices are often a balance between our desires and our means, but at the end of the day, they are decisions made with intent. But when it comes to how we want to be treated at the end our lives, often we don't express our intent or tell our loved ones about it.
This has real consequences. 73% of Americans would prefer to die at home, but up to 50% die in hospital. More than 80% of Californians say their loved ones "know exactly" or have a "good idea" of what their wishes would be if they were in a persistent coma, but only 50% say they've talked to them about their preferences.
But our end of life experiences are about a lot more than statistics. They're about all of us. So the first thing we need to do is start talking.
Engage With Grace: The One Slide Project was designed with one simple goal: to help get the conversation about end of life experience started. The idea is simple: Create a tool to help get people talking. One Slide, with just five questions on it. Five questions designed to help get us talking with each other, with our loved ones, about our preferences. And we're asking people to share this One Slide - wherever and whenever they can...at a presentation, at dinner, at their book club. Just One Slide, just five questions.
Lets start a global discussion that, until now, most of us haven't had.
Here is what we are asking you: Download The One Slide and share it at any opportunity - with colleagues, family, friends. Think of the slide as currency and donate just two minutes whenever you can. Commit to being able to answer these five questions about end of life experience for yourself, and for your loved ones. Then commit to helping others do the same. Get this conversation started.
Let's start a viral movement driven by the change we as individuals can effect...and the incredibly positive impact we could have collectively. Help ensure that all of us - and the people we care for - can end our lives in the same purposeful way we live them.
Just One Slide, just one goal. Think of the enormous difference we can make together.
leslie :-D
11,191 Posts
great link, marachne.
rather than having a 'good death', many pts needlessly and tragically suffer to the very end, because too often, they go along with what family or md wants, putting their own wishes aside.
even more horrific, are the 'loved ones' who are there to supposedly advocate for the pt's wishes when they are unable to speak for themselves:
and the "advocate" selfishly wants anything/everything humanly possible done.
while i certainly struggle with variable aspects of pas, i soooo understand the attraction in wanting to remain in control of one's own life...and death.
sadly, our loved ones don't always make decisions based on our clearly expressed desires.
i'm rambling.:)
heh.
imagine that.
leslie
So, Leslie, can you fix my title then? I meant it to say :"The One Slide Project"
Maybe better would be "Engage with Grace"
And are you going to distribute it to others (outside the hospice community especially!) to think on?
Thanks!
Oh, also, I highly recommend the video on the site makes the story behind the project so much more real