Rett's Disorder

[Jolie, BSN]

I have a friend whose toddler daughter is being evaluated for a developmental disorder. Rett's disorder is part of the differential diagnosis. I've looked on the internet and found the diagnostic criteria, but little else. Does anyone have any experience with this, or could anyone describe the early clinical picture? Thanks.

[kids]

I have care for a half dozen (or so) girls with Rett Syndrome. All were diagnosed around age 3, all were initially thought to have a very mild case of CP.

I'll did thru my saved stuff and post my links later today/tonight (is a fairly large project).

[kids]

Sorry, I have the attention spam of a gnat.

These give lists/links to Rett Syndrome sites:

http://www.bdid.com/rett.htm

http://www.ibis-birthdefects.org/start/rettfact.htm

Search Rett Syndrome at the following sites:

http://directory.google.com/Top/Health/Conditions_and_Diseases/Rare_Disorders/

http://dmoz.org/Health/Conditions_and_Diseases/Rare_Disorders/

http://www.orpha.net/

http://www.neuro.wustl.edu/neuromuscular/alfindex.htm

[Jolie, BSN]

Thanks so much for the links! I really appreciate the help!