Anyone familier with Down Syndrome newborns????

Specialties Ob/Gyn

Published

I was wondering if any of you have any experience with newborns with Downs Syndrome??? My niece had a baby a few days ago, she was term, and the baby was having some difficulty breathing while eating so they put her in the NICU. They also mentioned that there was a gap between her big toe and second toe on both feet that was abnormal. All the tests they have run have come back normal, and there are no other physical abnormalities. They are doing a chromosome test, but we will not know the results for another week or so. The baby is progressing well and should go home Monday. I just graduated from a LVN program and have no experience with Downs Syndrome, I did some research online about it and I did find that she has some of the symptoms, like the feet and breathing difficulties, but she does not have many of the other ones that were listed. I am just worried that the staff is down playing it a little and my niece will get blind sided by this when she takes the baby to the pedi for her 2 week checkup. The neonatologist has told her that some babies do have difficulty coordinating suck, swallow, and breathing at first and it should resolve itself as long as there are no other abnormalities. Anyone ever seen any of these things in a term newborn, and if so, what was the outcome??

Shannon, thank you for your post. I will admit that WE nurses tend to get carried away of how we use our vocabularies forgetting that the words we use on a daily basis even though may not be deem inappropriate to one, it may have an effect on another. I feel that way when people refer to one of my pt as the "pt with aids." Besides, "DS" sounds more appropriate then "downs."

KAL

If anyone is interested, here is a really beautiful montage that shows what Down syndrome really is...it's called D is for Down syndrome:

http://www.onetruemedia.com/otm_site/view_shared?p=92b007767e44d89c93756&skin_id=0&utm_source=otm&utm_medium=text_url

Enjoy!

Shannon, You made me LOL about the 'Welcome to Holland" thing.I belong to several preemie groups and once a month someone will post it, like we've never seen it before. :rolleyes:

:roll :roll LOL! I know people have the best of intentions, but it does get old!

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