Nurses with Multiple Sclerosis

[Pfiesty]

Hi. A review of the posts here shows that it is best to not disclose this issue as long as possible. And between flares, most of us have symptoms easy enough to hide.

But we deal with similar issues: fear of disclosure, fear of being fired, fear of flares, dealing with symptoms and those awful MS meds.

I would really like to hear from other nurses with MS. It is really good to just know someone else in the same situation.

Does anyone else pop those MRI CDs in their own computer the minute you leave the radiologists office? Only a nurse!

Thanks.

[nursemeanie]

I'm so sorry you have so much on your plate! Losing income scares me to death, I'm divorced

and down to one income in an area with very high cost of living. My job provides health insurance, but obviously only if I'm still working. With the heat wave we are having, all my symptoms are flaring. Does the stress ever end? I'm so tired of MS being the first thing I think of when I wake up and the last before I fall asleep!

[wildred]

I was diagnosed in 2009 with multiple sclerosis. I loved nursing but the MS had cost me the vision in one eye and the fatigue was debilitating. I worked for as long as I could but finally had to go on disability. I had an office job doing Medicare appeals but finally my cognitive functioning declined. Fortunately I have a supportive family and I had disability insurance through my company. I will tell you if you have to apply for your disability to get an attorney. The disability company is not your friend. They denied my disability and denied my disability. They will talk very sweetly and pretend they are concerned. Within 2 weeks of getting an attorney I had my disability. Of course now he gets 30% of my check. The sad thing is I wrote the appeals up just like he did but I didn't have the attorney behind my name.

[LMW1]

Advice from other nurses with multiple sclerosis. Have any of you gone on to obtain your masters in nursing anesthesia, (CRNA)?