Unhappy 22 Weeker - page 4

undefined :rolleyes: This past week I got the assignment from you know where. A s/p 22 weeker on DOL # 210. NO LUNGS or GUT, little vision or hearings. Blood pressures out of the roof, meds (3... Read More

  1. by   Gompers
    Quote from Fridanurse
    I don't know what nursing ethics will allow for but I would hope that most parents would want you to make clear to them that the quality of life for the baby will not be a good one so they can make an informed decision.
    Sometimes no matter who talks to the parents, and what you say to them, it doesn't make a difference. To them, taking their baby off life support or "allowing them to die" as a DNR is the same as killing their baby. They feel religiously that they can't choose to end the baby's life, and somehow consider allowing the baby to suffer endlessly (in the hopes that they MIGHT end up okay) is a more moral decision for them. It's one of the hardest things about working in NICU. Other parents just can't let go, though you see this kind of situation all over the hospital with families and their sick relatives.

    I'm so glad your baby is doing well! Yes, wimpy white boys can give us a run for our money, but at 28 weeks he'll be fine. Congratulations Mommy!!!
  2. by   BittyBabyGrower
    We have several chronics on our unit that make one want to run and jump out the window. They are maxed out on pain meds, but I think there poor little neurons just jump and quiver so much that there isn't anything we can do. One will turn blue when you look at him and the other has steroid psychosis....I swear! :chuckle Neither of them have parents that come in and visit, but yet they still say oh, they'll be fine. How do you know, you're never here! Our OT PT take care of the whole peds section, so they can only devote so much time to them, and we can only hold them so long before we have other things to do. They are better off in the NICU because we can spend more time with them, the floors and or PICU won't accept them. So there they are. And as for ethics..once you have gone this far, most won't stop. The best we can do is hope that the family agrees to a DNR, but most won't.

    Ugh...they are soooo hard to care for!
  3. by   Freeda
    what will be the outcome for a baby like this if the parents don't agree to a DNR? Are we talking human vegetable here?
  4. by   Gompers
    Quote from Freeda
    what will be the outcome for a baby like this if the parents don't agree to a DNR? Are we talking human vegetable here?
    No, just severe developmental delays and cerebral palsy. Many have lung, gut, brain, hearing, and vision problems as well. They are chronic preemies. Many are on steroids and yes, I believe they get steroid psychosis!!! The hardest ones to me are the ones who have shunts from bad head bleeds - the high-pitched neurological cry gives me shivers down my spine.

    There are, of course, babies that are in a vegetative state whose parents keep them alive. Those kids usually have trachs, g-tubes, contractures, the whole thing. Most often these kids are the result of birth accidents (not necessarily the doctor's fault, more often knots in the umbilical cord and things like that) or strokes in utero.