DIC Survivor

Specialties Ob/Gyn

Published

I have to admit this, but I am not a nurse...nor am I a nursing student. I gave birth to my first child 2 years ago when I developed an amniotic fluid embolism (the doctors aren't sure). I had to have an emergency hysterectomy, and my kidneys and lungs failed. I was put into a medically-induced coma while on continuous dialysis. After my kidneys came back, I was in the hospital for another month due to blood clots, muscle deterioration, and a mysterious fever. When I went home, I scoured the internet looking up information on DIC and for other women who have experienced this. There are 2 reasons for my posting on here:

1. To let all the nurses know that you do make a big difference on your patients. Most of mine were great...very kind and patient with me.

2. To maybe connect with anyone else who has experienced DIC.

I have been thinking of volunteering in a hospital. I think my experience could help other women (only experience advice--never any medical advice). It would've been a great help talking with another woman who had DIC...how they have coped with it, how you still experience side effects 2 years later. Does anyone have any advice on how to go about this? Does anyone have any experience with DIC or patients who have had DIC? I was thinking about meeting with a head nurse (called a charge nurse?) about my situation and maybe giving my phone number to other women who may want to talk with me.

Thanks!!

I am also a D.I.C. survivor it happened during a renalectomy in 2003. Within the first day alone I was given 59 units of blood and more over a week for which I remained unconscious...its pretty weird to go into surgery and then awaken eight days later.I would be very interested in speaking to you and to know how your health is now.You may contact me at [email protected] It is been difficult to find another survivor.

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