Hi. I have a couple questions for home care nurses. I am an RN working in a NICU, I have been out of school a little over a year now. For the past three months in the NICU I have been primary to a little guy who is finally going home soon. He has a g-tube and trach (both due to a progressive mitochondrial disease). Mom is 16 but has been doing outstanding with him. All the nurses are constantly praising her and commenting how wonderful she has been doing with him (we all only wish the secondary caregiver, grandma, was doing as well). Of course in the hospital she has learned all the ways we do things, sterile technique, new feeding bag with every feed and every 6 hours during the nighttime continuous feeds, my question is how are things different in the home environment so I can prepare her for needing to learn possibly another way of doing things, specifically related to:
Trach suctioning...sterile? clean? are sterile gloves provided? are gloves even worn?
Feedings: I looked at the home care orders and it looked like only enough bags were ordered to have one each day, so if he is to receive 4 bolus feedings during the day and continuous overnight is the same bag used all day long? Does she need to clean it between feeds?
I guess I'm also wondering if it is normal for someone to show up and orient them to all the new equipment and home care way of doing things?
Thanks for the info! I don't know a lot of what happens outside the ICU but mom keeps asking me and I wish I could tell her more