I know how you feel
I have had IC for 9 years now, diagnosed when I was 15 by a cystoscopy. Much of my pain relief came from the drug Elmiron prescribed by my urologist. Another way we do to control pain is once a year I go under anesthesia to have a cystoscopy with hydrodialation of the bladder which apperently stretches the bladder out in which the blood lesions on the inside wall of the bladder fall off. So for a few days after the procedure you usually have a foley catheder where you can see those blood lesions falling off. It really really helps my pain for a long time afterwards.
I also see a pain specialist for IC which is connected to the fibromyalgia I have. Just thought i would share what I do for my pain. Curleysue
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