Nurse with disabilities trying to find a job that fits - page 2

Hi all. It has been a while since I have posted. I have been a nurse for 14 years. Have tried everything from M/S to tele to teaching at the college level. I now work at a busy outpatient wound care... Read More

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    Not really about me, but...

    Years before we got married, my husband, who has been disabled since birth (and in a wheelchair since age 7) with JRA and more recently myotonic dystrophy, was pushed (and hard) into going to college by VESID in NYS. He went all the way through and was almost done with his MSW (lacking only 2 credits) when VESID tells him that he is unemployable and he will lose his benefits if he tries to work. So he's peed off because he's now $100,000 in debt he can't pay (they were taking part of his SSD but now he only gets SSI so they said it's untouchable.) He was making $1200/week as drummer while in school (his legs work *somewhat*- can't walk- but he is good) but his now-ex-wife (also disabled) took all his money. He DOES have an AAS in Chemical Dependency Counseling, a BS in Sociology (emph. Social Services), and a ThM from a non-accredited seminary now, plus he's ordained as independent clergy, so hopefully he will be able to get back to doing something soon- he's getting antsy and driving me nuts lol...
    I was working when we got married but he got worse and now I stay home F/T with him as we do not qualify for any home health assistance- because I am an able-bodied person living in the home. He is getting better (hopefully it will continue) so I can go to work when I finish my degree and get us off the system.

    Okay, I just went off on a tangent... What was my point? Oh yeah:

    -VESID sucks (well, they paid for my LPN school costs, so I can't complain that much...)

    -they can garnish your SS Retirement or SS Disability (even if you are/were a "disabled-adult-child") directly from your check as long as they leave you at least $750 (they did this to hubby until we got married, then...) (NY only?)

    -they CANNOT touch SSI as it is for poor people without enough other resources (at least they don't touch hubby's). If it is in check form, it is untouchable until you deposit said check in account then it's fair game. We cashed hubby's at Price Chopper as it was the only place around here that would do so. If it is direct deposit and the account is labeled as an SSI account before it hits the account, it's untouchable. If it is on the debit card the SSA issues then it's untouchable. (what we are dealing with now.) (also maybe NY only?)

    One of hubby's vids for your enjoyment (?): Type O Negative Christian Woman/Black No. 1 Drum Cover by Aaron Mathews - YouTube (FF to 1 minute in as he has to wheel himself from the camera to his set)

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    I am so sorry. Welcome to my world. My Crohns and MS got so bad after I graduated and got a job that I quit thinking I could go back on SSD. Sure I could go back, but because the hubby receives SSD, we would get 1,600 a month. Can get SSD, medicare, but not medicaid. Now I have 100,000 in student loans, can't get a job in my field(either too stressful or that no one is hiring Gerontological Nurse Practitioners). Worse in that I recieved a loan for nurse educators and because I gave up my teaching job and couldn't get it back, the loan people want 2,000 dollars upfront. There is no jobs teaching nurses full time in a 4year college program. I am also paying back social security for overpayment and COBRA because the job I had did not have benefits. I live in upset New York. What am I or anyone else in the situation to do?
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    the nursing home jobs and assisted living jobs just aren't there. I used to belong to GAPNA, and even when I was a student they said that GNP's would have to be dual certified, as an ANP or FNP. NO way. Go into more debt? Plus the job I had I had to learn on the fly(no idea what I was teaching-no orientation 1st day here's the material so teach, never taught before). Paid 800 dollars to take the ANCC test, but missed it. Called the ANCC, b/c I missed the testing window, I find out NOW(wish I knew this before) that I cannot take the test without paying the 800 dollars again. If I can't get a job as a GNP, why bother with the test? As soon as I graduated, the college closed the program(lack of interest, NO JOBS). Hate to complain, but I feel like I was sold a bill of goods, yes the college did know that I had MS, dx with crohns after I graduated. Wish they had stopped me, that I would never get a job in my field.
    *sigh* Thank you for listening and responding to my post. God bless you all.
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    PS I should say no jobs in NY. All my children and grandchildren are in NY(except for one son an Air Force pilot in Afganistan, and one son leaving for army boot camp before thanksgiving.
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    afjgnp we are in Whitesboro, NY, just outside Utica- where are you, if you don't mind my asking?
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    I have family in utica. I am orginally from Rochester, now living in Buffalo.
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    Quote from Marisette
    I'm so sorry to hear of your situation. I think someone with your experience and education would be an excellent case manager. I believe a long work history and education history signals older nurse to a potential employer. I wonder if removing some of the older experiences and some of the degrees would help. Of course, it would effect salary, but perhaps it may lead to a more favorable job that is more accomodating to your disabilities. I'm not sure if omiting the information is a good idea because employers typically perform background checks. Perhaps someone else can add to this.
    Thank you for this Marisette, but every job I have applied for as a case manager, I haven't gotten. Maybe because they are through insurance companies?
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    I am an RN with 20 years experience,diploma grad. I sustained an on the job injury to L4-L5, herniated disc. My doc advised me to leave bedside nursing for good. I've been looking for a job for 3 months and no one wanted to hire me-at least 50 or 60 resumes out(Also workmans comp denied). However, I just was hired as a case manager at a large teaching hospital here in the midwest. I was told that case management is the up and coming specialty for nurses due to the impending health care changes. You might want to look into hospital case management. I don't even have a bachelor's degree and I was hired.
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    It seems that hospital case management i a great thing in the midwest. I have a friend who got in with no experience. I have 8 years of experience here in Florida, and they are always interested until they get to the question of "Can you lift at least 50 pounds?"., I can't. Then it's bye-bye. Tried to fake it once but when I got to human resources I was required to pick up a box that had 50 pounds of weight in it, carry it across the room, and place it on the floor. I can't do that. I would be damaged and in misery. It seems to be a requirement here to be able to lift, even if the most you will lift is a pen! It really makes me mad because as long as I follow my personal rules and watch what I do, I am fine. I have nothing because I have to live with my father and because of his social security and small pension, I don't qualify for Medicaid or food stamps. They are forcing us to live off of his income. If I left or if he dies, I will be homeless. I continue to fight my way through Voc Rehab, but my counselor is worthless. I have to push him and lead him through everything! Why, when were injured in the line of duty, does the nursing community turn their backs on us so quickly?? Prayers for everyone!
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    babynurse: I agree with you. Why is it that the profession that cares can't care about its own. I am not supposed to be working either(MS, Crohn's disease, Thyroid Cancer, Hypoparathyroidism) but I do because my husband and I could not live. He is on SSD because of DDD and arthritis. Sure we could get medicare, but not medicaid. We owe the hospital about $800 alone for his colonscopy(medicare alone). Couldn't work my last job,A floor job(too stressful and was wearing me down). I have not worked in a clinical area since 1999. In New York if you wanted to be with case management, you have to have RECENT(within the last 5 years ) experience. I have over 100,000 dollars in student loans. Part of that is a HRSA Nurse Faculty Loan(you get 85% of your one loan[13,000 for me] if you teach at a four year RN program). I did, but I left thinking I could go back on disability. No. Now I have the college that got me the loan down my neck to pay back $100 a month for a year(so I can get another teaching position). I've tried talking to them. I haven't worked in 2 months. No money for rent,food,meds NOTHING. We will be homeless soon. And these jerks still want to do this until "you get another teaching position. There isn't any in upstate new york. If there is, they want you to have a PhD. Sure, let me take out MORE loans I can't afford to pay back when as in the words of my Gastro NP"It is only a matter of time before she is forced to go on disability. Sorry for the rant, but we ALL paid to go to school and now when WE need the help,all we get is doors slammed in our face. ANd if you can't work and are disabled why the blue blazes do you have to pay back student loans!!!!! Sorry guys. God bless and keep you all.
    babynurse428 likes this.

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