I have read about her in the past while pouring through the internet during the initial phases of dealing with my son's diagnosis. I just knew there was someone, or something out there that could help us.
We see Dr. Ralph Waldo MD. He is a psychiatrist and we took Evan there because we were told he had ADHD and Anxiety issues, not PDD-NOS or Autism. Go figure. We discovered his extremely high B12 levels quite by accident, iron deficiency and other amino acid levels way off. I began to read about his test results to find out that he has a condition called hypomethiolation. I wonder if this is something that could be screened for as we do infants for PKU and Hypthyroidism etc. Imagine if I was supplementing him from birth? Now, we supplement him with a lot of different things. We have tried an oral chelation product. We are now doing food allergy IGE IGG testing. We have tried the diet with both kids. I think my 3 year old responded better than my son.
We are starting my daughter's treatment plan in July. The cost for both of them has been tremendous. The monthly supplementations are very expensive and our doc is out of network, we go to Indianapolis to see him. It's about 2 hour drive. All of the inital labwork was out of pocket for us, up to our $1500.00 deductible. On top of that, our insurance is privately held and they cannot be held accountable to the Autism Insurance Mandate for Indiana. That stinks!
I just cannot believe the little amount of resources available to our community regarding Autism. I can't believe that the American Academy of Pediatrics is not pushing for more education of their physicians. I think this is the best reason that nurses who are interested in this field could make a HUGE difference. As nurses we treat the WHOLE person...not just the obvious illness or disability. Autism is a disorder that is influenced by every factor of a child's life. Financially, nutritionally, emotionally, socially, physically, economically...I could go on and on.
I would also like to have a chance to visit some other Autism Centers and talk with them about how they got started, what works and what doesn't work. I have no background in billing, coding etc and I know that business end of things would be something I would need help with.
Anyway, I could talk forever...
Feel free to email me anytime if you want to talk. I'm also on Facebook.
I love my children and I want to be able to give HOPE to other mothers out there. I want them to know that Autism is not the end of the world, it's not a death sentence...there is a way to move through and to live a happy, successful, fufilling life with your child.