I have now seen 6 patients with calciphylaxis. This is supposed to be an extremely rare disease, but I feel like we see a lot for this disease to be 'extremely' rare. Just wondering if any of you have dealt with this. I know that I am more likely to see this than a hospital nurse, because I work with dying people, but 6 patients in 2 years is a lot. For comparison, I have seen Creutzfeldt-Jakob disease (another extremely rare disease) 2 times in 3 years.
For those who do not know, it is generally diagnosed in stage 5 kidney failure, and is calcification of small blood vessels throughout the body that leads to severe necrotic wounds. It is fatal.