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IC and Pain

Pain   (2,986 Views | 2 Replies)

2,826 Profile Views; 61 Posts

Well I am at the end of a rope with my interstital cystitis. The pain is making me crazy, not to mention going to the bathroom every 2 seconds. Pain management and my doctor (urologist) don't belong in the same sentence. My urologist is the only one who specializes in this so I just can't stop going there. At this point I'll try anything and everything......Any thoughts?

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22 Posts; 916 Profile Views

My mother has IC. She has tried many different meds and has gotten the most relief from Tegretol.

Well I am at the end of a rope with my interstital cystitis. The pain is making me crazy, not to mention going to the bathroom every 2 seconds. Pain management and my doctor (urologist) don't belong in the same sentence. My urologist is the only one who specializes in this so I just can't stop going there. At this point I'll try anything and everything......Any thoughts?

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100 Posts; 2,289 Profile Views

I have had IC for 9 years now, diagnosed when I was 15 by a cystoscopy. Much of my pain relief came from the drug Elmiron prescribed by my urologist. Another way we do to control pain is once a year I go under anesthesia to have a cystoscopy with hydrodialation of the bladder which apperently stretches the bladder out in which the blood lesions on the inside wall of the bladder fall off. So for a few days after the procedure you usually have a foley catheder where you can see those blood lesions falling off. It really really helps my pain for a long time afterwards.

I also see a pain specialist for IC which is connected to the fibromyalgia I have. Just thought i would share what I do for my pain. Curleysue

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