IC and Pain

margo123 · Nov 14, 2004

My mother has IC. She has tried many different meds and has gotten the most relief from Tegretol.

Well I am at the end of a rope with my interstital cystitis. The pain is making me crazy, not to mention going to the bathroom every 2 seconds. Pain management and my doctor (urologist) don't belong in the same sentence. My urologist is the only one who specializes in this so I just can't stop going there. At this point I'll try anything and everything......Any thoughts?

curleysue · Jan 1, 2005

I have had IC for 9 years now, diagnosed when I was 15 by a cystoscopy. Much of my pain relief came from the drug Elmiron prescribed by my urologist. Another way we do to control pain is once a year I go under anesthesia to have a cystoscopy with hydrodialation of the bladder which apperently stretches the bladder out in which the blood lesions on the inside wall of the bladder fall off. So for a few days after the procedure you usually have a foley catheder where you can see those blood lesions falling off. It really really helps my pain for a long time afterwards.

I also see a pain specialist for IC which is connected to the fibromyalgia I have. Just thought i would share what I do for my pain. Curleysue