Let me start by saying that I'm posting this with permission on behalf of my friend. She's been going to doctors for this problem and can't seem to find an answer. I'm not sure what to say to her so I thought I would post this here and maybe (hopefully) someone here would at least have an idea where to go next.
My friend is a 41 year old woman with two kids aged 15 and soon to be 12. When she was pregnant with her first child she developed a nasty pain in her lower back. Doctor said she had facet syndrome and left it at that. Back-strengthening exercises got her through her pregnancy without much trouble. After the baby was born she discovered that when she pressed on her lumbar spine she experienced what she discribes as an "exquisite" pain. Her husband once pressed on her lower back and she said the pain reduced her to tears. It doesn't hurt when she moves but the pain on palpation does get worse when she's tired.
She went to a rheumatologist about 10 years ago and even though this doc tossed around a few diagnosis' (fibromyalgia and ankylosing spondilitis) none were ever confirmed and followe-up. She did discover around that time that she had developed Hashimoto's Thyroiditis over the previous few years and is now on synthroid.
A few years ago the pain on palpation started to spread down to her hips and legs. She tried to exercise but found that doing floor work was next to impossible since her back and her hips hurt too much when she was lying on them. Now she has pain in her back, hips and the outside of her thighs right down to just above her knees.
The really odd thing is that she has no pain moving and that the muscles don't actually ache. I poked her hip with my finger and she jumped..I didn't even push hard, about as hard as you would say push a doorbell. She can lie on a soft surface but not a hard. She can also pinch the outside of her thigh without pain. It only seems to hurt when she presses against the bone.
She's been to a few docs and they all seem to end up treating her the same, like it's all in her head.
She says she's been tested for RA and lupus. She says she has some of the fibromyalgia tender pressure points but no other pain. Thyroid is okay. All other blood work is fine according to doc. She even had a total body bone scan once which came back normal. She's overweight, with a BMI of 30
Could all this be fibro?
It doesn't stop her. She's a healthy, active woman (although not as fit as she could be). But she would love to know what on earth is wrong with her.
I have no idea and was kind of hoping that your collective wisdom would help unravel this.
Thanks on behalf of my friend.
Jun 22, '04
Tell her to try magnesium supplements (many people are deficient and it seems to help with chronic pain) and send her to a neurologist and an ortho.
Last edit by melpn on Jun 22, '04
: Reason: added explanation