End of life questions

Nurses General Nursing

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Just lately, I've had an odd run of "comfort care" patients (end-of-life, palliative care) and I've run into a couple of issues that concern me. In particular, a dying patient's family told me that their doctor had urged them to have the trach removed because it was only prolonging the dying process. This patient was already off O2, but breathing steadily on room air through his tracheostomy. I thought perhaps the family had misunderstood, but later, as the doctor was pronouncing him, he mentioned to me that it was only the trach that had kept him going so long (at least 8 days).

Is it regular and customary to remove a dying patient's artificial airway? To me, it seems a bit like saying only my nostrils have kept me going this long. If I were terminal, putting a pillow over my face would not be medically ethical.

My other concern is that this patient was more severely dehydrated than I would have thought possible. His eyes were sunken about 2cm ib their sockets. By the time I got him, it was probably too late to matter, but I wonder if he should have been on maintenance fluids, despite his DNR status.

I'm opposed to euthanasia on moral grounds, but I have no objection to measures to improve pt comfort, even when they may hasten death. Some of the aides I work with believe turning a dying patient will cause them to die sooner, but I think if I were in that position, I would rather go a few hours sooner in a clean bed. I have been instructed in school and in CEU's that we shouldn't be afraid to give adequate pain relief to dying patients.

I feel pretty comfortable with all that. But it seems to me, also, that a patent airway and adequate hydration would also contribute to patient comfort, even though they might also tend to delay death.

I'd certainly appreciate any feedback on these concerns.

Earle58 is right regarding the hydration. There is a small but though, not contradicting what is said, but in that there are some exceptions.

Some of our patients who are close to death, but not yet knocking on the door, may become very confused and it could be because of dehydration. If we suspect that this is the cause, we will give clysis (never IVs in our residence). The clysis is administered through a butterfly into the s/c tissue. I've seen both good and neutral results from the treatment. We really don't use it very much and when we do use it, it is really a trial to see if the hydration reverses the confusions.

As for the trach question, I would imagine it depends on why the trach. Did the pt have the trach because of long-term vent use, or was the trach his only access to air? I'm afraid that I can't comment on that though.

I often come across nurses who say that they have experience with palliative care because they've worked with dying patients. Unfortuntely, it's not really the same. Palliative care has a mindset that is different. I remember looking after dying patients when I worked on a med floor, and although we tried our best to provide good and decent care, it really isn't the same.

As disturbing as the experience may have been, it looks like you really learned from it. The best way to learn is to ask, which is what you did.

Specializes in Rodeo Nursing (Neuro).

Many thanks. As I said, I do trust the doctors I work with, but it's good to see their judgements confirmed. After some thought, it occurs to me that there was no reason to believe the pt would immediately suffocate without the trach, since he still had his oral/nasal airway. I think the trach and PEG were done when there was still a glimmer of hope.

The few other such patients I've had didn't show nearly as much dehydration, but all were elderly. Unfortunately, this one was much younger. It's hard enough to watch someone my age care for a dying parent, but to see them care for a dying (adult) child shouldn't happen.

I'm a little surprised by the advice on suction, since I have previously been taught to due suction, even OT suction. So far, I've managed by heeding the wishes of the families, who've generally preferred not to have it, or at least not too often. I'm a little leery of too frequent suction even on patients who are expected to live. I know it's necessary, but I think we sometimes get a little too aggressive with it.

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