The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

i feel for you and also for the daughter.... it's never easy to let go... because at the back of your mind there is always that small voice of hope and the probability of what-if's... you wanted to respect the patient's wishes but to leave things as it was is difficult... watching someone you love die right before your eyes with the knowledge that you can't do anything... is one hard call... :'(

Specializes in ICU, HH, CM, Transplant.

An amazing story, mahalo for sharing. This is a scenario we face far too often. No matter how often we say "If you love them, let them go on their terms", they don't listen. Even though I dislike the daughter's decision, when it's her time to go, I hope we follow her wishes. I agree, you didn't fail her, you gave the comfort and care she deserved in the given circumstances, but I understand your feeling the way you do.

That daughter is selfish and if she really loved her mother she would have not put her through that, that poor lady all she wanted to do is die in peace. I surely will pass this on.

Specializes in geriatric.

i am only a cna and i have to do the brunt work in my job but i have seen this happen in a nurseing home and i see people live for so long past when they wanted and working in a nurseing home i have seen people go from walking and talking to vegtabules and i know i would never want that for myself i have seen nurses do there job and folow there orders and this article was just amazing and just like my user name at most times all i can say when things like this hapen is i just work here i try my best to make a differince and i hope i do i just also hope that my loved ones know and love me enough to never put me throu anything like that oh gosh i am just tearing up

So, so sad. :'( And to think of the similar and unheard stories like this one. Breaks your heart.

Where in the world does it say you can't be a DNR if you're healthy???? Anyone can be a DNR if they wish!!!! Or is this saying that because she was healthy there was no need for one at the time???

This is so sad....the family physician needs to re think his profession. He is the front line of defence.

Nursing has a firm committment to do no harm. I am so blessed that I work in an environment that I am not only able but expected to advocate for the patient and their wishes, to a level that includes refusing to follow through with a directive that inflicts harm. Bless you for not continuing the feeds.

Thanks for sharing what so many of us experience while working. Very well written.

Specializes in Med-surg,icu,er,surgical floor,recovery.

So sad and tragic. Beutifully written. I'm utterly speechless as to what to say about the daughter.

This is why I like the idea of being a Hospice Nurse. Patients are able to die with dignity and the way they want too.

Specializes in OB, critical care, hospice, farm/industr.

And this is why I love being a hospice nurse. Truly a privilege.

Specializes in E.R., LTC, Blood Banking,Management.

First of all, you didn't "Fail" your patient...you were following orders (although I get it) but secondly, WHAT STATE DO YOU PRACTICE IN? I have been a Nurse for 17 years and NEVER have I heart of having to "Qualify" for DNR status! I'm in Illinois, a 20 yr old can be a DNR!

That is VERY sad! but as you also know, ribs break when CPR is performed...I've even broke a few noses, when I couldn't get a good seal from the Ambu bag-

I believe in a "Good Death" I also think we need to educate families on "Quality" of life vs "Quantity"

I have a Sister that hasn't spoken to me since outr father died...He was in Multi system organ failure, and lungs were FULL of fluids...I asked the DOC for Morphine Sulfate for "Resp Distress" which thay gave to ease my Fathers suffering, he passed after a few doses, PEACEFULLY! As We Nurses know M.S. is a resp supressant, and can ease the transition (helps the family too, nobody wants to remember the final hours of with their loved one, DROWNING!) it's VERY taumatic!

We put horses, and dogs and cats down for FAR LESS!!! I'm not advocating euthinasesa, but when you KNOW that the person is NOT going to survive, lets give them comfort!!! and make the transition a smooth one!

I know this is controverseal, and I may even get some haters for this, but it's my opinion...

Peace,

Ed

I have long since retired from nursing but we used to have a little man whose family put him through @#%&! He was coded so many times, force fed through NG tubes, etc. His family rarely came to see him and they refused to let him go to a nursing home. So he would go home for a few days, then come back to the hospital to stay in ICU for 3-4 weeks. He was just a vegetable, couldn't talk much less walk or turn himself in bed. He had children who could have taken care of him but from the looks of him when he was brought back in every time, they didn't. We decided among ourselves that the family must have been after his monthly SS check which would have gone to a nursing home. I will never forget him.