The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

Quote
"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

I had to leave ICU nursing because of situations like this, it was just too depressing! Living wills are only as good as the family you have following them or not in this case. This also just happened to my best friends father. He had a thoracic anerysm blow and they lost brain waves during surgery. Post op, he had an MI and a large CVA. The two brothers went against his living will and kept him alive for 1 month, hoping he would awaken. He aspirated and died the morning they were supposed to make a decision about sending him to a nursing home. We have an ethics committee for situations like this and get them involved regularly.

To: LonKieffer

Kudos to you; I agree with your post completely regarding the position that gtmahar posted. I have been an RN for 20 years and have basically worked in every area of nursing from Med Surg to Hospice; I have worked in ICU and Cardiology. I have been in the position many times Re: The Patient I Failed Article; she did not in any way fail her patient, the family or herself as a Nurse. The Article was very eloquent and very well written and you have nothing whatsoever to feel negative about. Many times I have been in this situation myself and have approach my Physicians to plead to them to intervene regarding stimulating a DNR status; encouraged them to initiate discussions with the family members and they have simply turned and walked away and left the situation to evolve in a course that many times are not favorable for the patient. There have been times when I have taken it upon myself to confront the family and basically have been called on the carpet for trying to be a patient advocate. It is a very difficult controversy to deal with and more times than not the Nurse becomes the scape goat if things go awry and someone is disgruntled about the care or the outcome.

I just want this young lady to know that her actions and reactions were to be commended and you should let yourself off the hook and pat yourself on the back.

I am so very sorry you experienced this...i know it will be with you for ever and probably wont be the last. I am not trying to be cruel....just understanding.

I want to thank you for your devotion to your profession. She was very greedy and the doctors could have interviened as i have seen them do so many times during the thirteen years my husband was in and out of hospitals...(copd).

Dear sweet nurse you cared for her to the best of your ability...you did not fail this patient...from what has been written ; you are the only one that did not fail this patient.

I want to thank you for not playing god cause that has happened cause the staff could not handle the abuse being done to patients in this predictiment. In thirteen years sitting outside smoking you hear nurses,doctors,respiratory therapists,clerks,all hospital personel talk....you just there smoke your cigarrett; say a prayer the nurses are taking care of your loved one with all the devotion you showed this patient.

May i stand and applaud you!!!!!!!!!!!!!!!!!!!!!!!!!thank you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Happens everyday. You didn't fail anyone!

The selfishness of the family member has rendered me speechless.

You didn't let her down. You gave her the compassion she needed during the hell her daughter put her through. I have been a nurse for many years and have seen the same, many times. If my children do this to me, I will forever spend my eternity making them pay. I have watch similar scenerios over and over. Infact your story was so well written, I'm going to print it and put it on my fridge hoping my children read and learn. It is awful to have to be the care provider for someone that is suffering and tired, and watching the family who supposedly loves them, allow and extend the suffering. That's why it's so important to have a POA that can be trusted to perform wishes according to your desires.

As a hospice nurse I find this same situation oh so true, but I also know that anyone can be a DNR! The daughter, the doctor, and the attorney all failed this pt. You did the right thing as a nurse, but it is heart breaking.

Specializes in Cardiology.

There are times when people are just so disappointing... But what can we do?

Nicely written....I hate when this thing happens. I love that here we are starting to bring families in to see and listen to what happens during a code. I have had this discussion with my grown children several times and since they cannot let go I have lmade my brother POA. As a group my siblings and I decided that sense I am the only nurse I make our Mother;s decision if she can't. I love my Mother enough to let her go.

Specializes in N/A.

How eloquently written and moving. I cannot imagine having to deal with such a circumstance, for that you have my respect and admiration. It is nice to see that not all medical professionals are mechanical--I have encountered a disappointing number in my life. Though I am not in or likely to be in the nursing profession, I felt the need to let you know how moved I was by this post.

Specializes in Trauma, Emergency.

oh wow. people act crazy in times of great stress, and that's made apparent by the daughter's actions. she allowed her own desires to cloud over her mother's own desires. so very sad! but i can understand how difficult it might be for a daughter to let a mother go. DNR is one thing with my patients, but if i came into my own mother's house and she were collapsed without a pulse/respirations on the floor, i would have a very difficult time not acting in some way to try to revive her. how sad for everyone! but most of all the mother who struggled and suffered through her last days. :crying2:

That is so beautiful and sad at the same time. You have managed in so few words to describe what we as nurses face on numerous occasions. Fighting with the family while the forget the one important person THE PATIENT!!!! The wishes are so often forgot and are treated like a thing. Like you it breaks my heart every time and I feel I have failed.

Thank you for sharing your experience