Quote from acenab4jc
had a little one, less than a week old and diagnosed with leukemia - anyone ever see this?
Yes, in 2002 my son was born on 10/22 and diagnosed with AML M5 on 12/19/02. Doctors at Lucile Packard in Palo Alto, CA said after looking at the cells they determined the age of the cell were 3 months old.
He survived 19 months after undergoing over 60 surgical procedures, ARDS and over 8 months of aspergelocis (sp) (CNS Fungus) which is what eventually took his life on 8/28/04. We were in the hospital for 9 consecutive months.
I'm here because I am starting up a nonprofit to help families like mine through this roller coaster ride and just looking for solid medical facts. Like how many children are born with cancer in the US and if possible around the world? How long is the average length of their life if and when they do pass? How about numbers based on age of diagnoses; 0 - 5, 6 - 10, 11 - 19? Is there a specific place or journal of medical facts I can access?
If anyone sees this, please respond and let me know.