I need help in terms of information. My name is Eileen, I am an ARDS survivor and also President of the ARDS Foundation, a national, not for profit organization dedicated to supported those with ARDS, and their families, raising public awareness, education, and funds for research.
I get asked this question often, but never have adequate answers ... regarding vent facilities, throughout the country, when a patient is being moved out of the hospital. Often the families receive suggestions, sometimes not more that one option, regarding where to send their loved one, and often they are given one day, or two, to make this important decision.
Some of these facilities have a very poor weaning record for vent patients and so I am painstakingly attempting to create my own list, in light of the fact that I have emailed every organization I can find and no one is able to give me a list of LTAC facilities.
Currently, I have about sixty hospitals on my own list, not counting Kindred and other multiple hospital listings. I now know that these is no list but every time someone tells me about a LTAC facility, I am able to locate more.1 If anyone can help me further, I would appreciate it. We are going to post the list so others can utilize the info. The US or Canada, it would be wonderful!
Thank you for your time, Eileen
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