:( sad and in need of advice

I don't know if it will make it worse, the first few months can be horrendous with premies, when RSV season hits. With some babies it was a revolving door, but things did improve as they got older (and bigger).

Did he get Synagis? it doesn't stop RSV, but they don't usually get as sick. I'm sorry your little guy is having such problems. Hang in there, mom!

mimi

I'm sorry to hear that. My son had RSV earlier this year. He was in the hospital several days, fortunatly recovered enough to avoid intubation. He was near term, but I don't notice anything with his lungs. Actually, I don't think he's been sick since!

Hope your little one is well soon!

Oh, I am soo sorry... Usually we end up going to PICU and caring for these kids when we float...they are sick for a long time and sometimes they are on the vent for a while. It is a long recovery and they get almost like an adult version of RDS.

Take care and I hope he gets off the vent quickly!

My son (a 25 weeker, now 4 months old) was admitted to ICU last week after testing + for RSV Bronchiolitis. Over the weekend we were told that this had progressed to a serious condition called "Bronchiolitis Obliterans".

Im wondering whether any of you have any input or information on this. We have been told that there is no more medicine that can cure Jacob. he is on everything available. We know the outlook is grim, but I was wondering if you know of any survivors that had this as a result of RSV.

Very sad. jacobs mum

Originally posted by jacobsmum

My son (a 25 weeker, now 4 months old) was admitted to ICU last week after testing + for RSV Bronchiolitis. Over the weekend we were told that this had progressed to a serious condition called "Bronchiolitis Obliterans".

Im wondering whether any of you have any input or information on this. We have been told that there is no more medicine that can cure Jacob. he is on everything available. We know the outlook is grim, but I was wondering if you know of any survivors that had this as a result of RSV.

Very sad. jacobs mum

No, I have no info on this, but hopefully someone here will.

I just wanted to tell you how sorry I am that your son is so ill.

Just wanted to let you know I CARE, and that I hurt with you.

Warmest hugs and wishes for a most speedy recovery for your wee one.

(((HUGS)))

Originally posted by jacobsmum

My son (a 25 weeker, now 4 months old) was admitted to ICU last week after testing + for RSV Bronchiolitis. Over the weekend we were told that this had progressed to a serious condition called "Bronchiolitis Obliterans".

Im wondering whether any of you have any input or information on this. We have been told that there is no more medicine that can cure Jacob. he is on everything available. We know the outlook is grim, but I was wondering if you know of any survivors that had this as a result of RSV.

Very sad. jacobs mum

((()))

I'm sorry as well. I have nothing constructive to advise or contribute. Just wishing your son well. Sometimes time is all that can be used to heal illness.

Hang in there.

Shar

I cant answer your Question.

I just wanted to say how sorry I am and to send you a hug here from Iceland.

Stay strong and dont loose hope. I have seen the impossile happen here in my NICU.

HUGS from iceNICUnurse.

I have heard of "BOOP" and had at least one adult patient with it but it was years ago. I'm sorry I have nothing to offer you either except my prayers for baby Jacob.

I'm very sorry to read about your Jacob. The little ones can be so sick with RSV. I've never heard of bronchiolitis obliterans, but it sound like he is having a very rough time.

My thoughts and prayers are with you and your little one.

here is the CDC link I got when I typed in bronch. etc

http://search.cdc.gov/search97cgi/s97is.dll?queryText=bronchiolitis+obliterans&B1=Search&SortField=score&Action=FilterSearch&Collection=cdcall1&ResultTemplate=nsearchresult.hts&filter=newsearch.hts

I wish you the best of luck and my prayers are with you.