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Discussion

She is so dear to me...

6..."going on 7" if you ask her.

Teeny weeny little thing...barely weighing in at 20 kilos.

A Cystic Fibrosis patient who has a multitude of respiratory and GI issues and has been admitted to our hospital 64 times since birth.

An ex 24 weeker, in-vitro firtilazation, a "miracle baby..."

High functioning Autism and also diagnosed with OCD

I love her

She is a quiet storm

She looks so small lying in the bed hooked up to a pulse ox, TPN, lipids, IVF and G-tube feeds

But she is so brave

She endures countless procedures,

Endoscopy after brochoscopy after colonoscopy.

Lab draws, respiratory treatments, vitals signs, assessments

She is cooperative through it all, and loves it when you let her do help with flushing her port-a-cath

Admitted this time for bloody stools

Endoscopy revealed gastric varices

"Active bleeding.."

Her time is near, the doctors tell us

Portal hypertension,

and her liver is failing

H:H critically low

Transfusion after transfusion

Her mother is trying to hold it together

Trying to hold on to her "Miracle baby.."

I leave work in tears

Thinking...what will happen to this little brave soilder once she gets tired of fighting..

She is my little "miracle patient.."

And she is so dear to me...

Featured Replies

poor wee thing

  • Experts

She is so lucky to have such a wonderful nurse caring for her and her mother.

pedi....

now that's what nursing is all about! you're an inspiration, and though you don't know me, i'm proud to be called a nurse along side nurses like you. keep up the good work, and never let anyone bring that special gift of yours down. much thanks to you, sweet pedi....

nurse_drumm

That is absolutely beautiful. I bet her parents would be touched by this, and I hope you've shared it with them.

Kids with CF are so special. They are not here on earth for all that long, but they touch so many people and make us remember what is important.

  • Experts

Beautiful poem. I too hope you have shared it c her family. My guess is that when she is tired of fighting she will go to a place where she's not suffering any longer. That's what I believe, anyway. And her life and what you have done for her will have mattered. Thanks for sharing your heart with us.

Kids with CF are so special. They are not here on earth for all that long, but they touch so many people and make us remember what is important.

Amen.

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