He was in his early sixties. He had been in a traffic accident and had come to us for rehabilitation. He had a nasogastric tube in. They wanted him to have a PEG (percutaneous epigastric tube). He realised that he would never be able to swallow anything again. This was because he had a stroke after his accident and was very limited in his self-care abilities. He also wasn't able to speak very well at all, but with a lot of effort he could write what he wanted, he was just able to do this. He had a much younger wife.. He said--or actually he wrote (because he couldn't really speak)--that he didn't want any intervention of any kind. No PEG, and no resuscitation or any other treatment if he had another stroke. But she (his wife) desperately wanted him to have every treatment possible. He (the patient) was begging the doctors and begging us not to have anything done. But the doctor wouldn't put a no-CPR order in his medical record. Wouldn't agree to it because the wife didn't want it. It was a horrendous situation. He (the patient) would write little notes to us saying things like "please no tube" and hold them out to us and put them in our pockets. Even though he had a stroke he appeared to be as mentally alert as you or I. The doctors said his quality of life wouldn't be too bad. He would go to a nursing home and be looked after and fed through the PEG. He would possibly be able to live for years like that, if he didn't have another stroke or something. He would write to his wife that he loved her but he didn't want to live like this. He would get really angry that he wasn't being listened to, and try to express himself verbally but couldn't, and she would sit with him and cry and say she couldn't let him go. It was such a stressful situation for everyone, the nurses were all so upset about it, but what could we do?"
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He was in his early sixties. He had been in a traffic accident and had come to us for rehabilitation. He had a nasogastric tube in. They wanted him to have a PEG (percutaneous epigastric tube). He realised that he would never be able to swallow anything again. This was because he had a stroke after his accident and was very limited in his self-care abilities. He also wasn't able to speak very well at all, but with a lot of effort he could write what he wanted, he was just able to do this. He had a much younger wife.. He said--or actually he wrote (because he couldn't really speak)--that he didn't want any intervention of any kind. No PEG, and no resuscitation or any other treatment if he had another stroke. But she (his wife) desperately wanted him to have every treatment possible. He (the patient) was begging the doctors and begging us not to have anything done. But the doctor wouldn't put a no-CPR order in his medical record. Wouldn't agree to it because the wife didn't want it. It was a horrendous situation. He (the patient) would write little notes to us saying things like "please no tube" and hold them out to us and put them in our pockets. Even though he had a stroke he appeared to be as mentally alert as you or I. The doctors said his quality of life wouldn't be too bad. He would go to a nursing home and be looked after and fed through the PEG. He would possibly be able to live for years like that, if he didn't have another stroke or something. He would write to his wife that he loved her but he didn't want to live like this. He would get really angry that he wasn't being listened to, and try to express himself verbally but couldn't, and she would sit with him and cry and say she couldn't let him go. It was such a stressful situation for everyone, the nurses were all so upset about it, but what could we do?"