bigaugustlion

$17.00 home health with emphasis on pediatrics on vents, so. Cal.

Kel, she is very responsive, and is tolerating g tube feedings well. She does not speak however. Shes trach/ vent and I can't even hear her cry when she does... I just met the hospice rn last week, and you are correct in that she is invaluable! It was sure nice to know that with new orders that I can get them thru hospice in lieu of waiting for doc to c/b. thank you for your response. ang

Kel, what signs do I look for when a patient with hepatoblastoma, starts to go into the final stage, right before they're going to die? I've just convinced the family (with help from my hospice case mgr) to give us the Ativan to give the baby. Mom seems to have come to the place where she has detached from active involvement with this child on a daily basis... which I'm sure is a coping mechanism. But getting parents to allow them to have comforting meds is difficult to say the least. They bragged last week that they're only giving ibuprofen and she is doing fine with this regime alone. She's not. Shes strughking with inability to blow off cO2, They really only see her momentarily. It's really hard. I feel like my hands are tied. anyway, any advice would be helpful. thank you ang

hello Sarah, thank you for sharing. boy how God brings people together!! this is my first comment as well. I am new to this site as well. I came on here to ask questions in a nursing forum on issues and question that I sometimes have. And I found you, you see I am an LPN who does home nursing as well. I currently have a 14 month old baby girl with end-stage liver cancer. I do have a tendency to get close to the family of my patient as well as my patient. I have never had a terminal baby before and this will be my first. I do believe in God and separating myself from what I have to do and keeping the emotions to the side is something that I've been really trying to work on. I guess I figure I will have to deal with the inevitable when it comes. Anyway thank you so much for sharing it really made me feel some strength knowing that there are other people who are going through this same thing. thank you again, God bless. Angie