Floss_50

G'day. I have found that this site is very informative and very down to earth. Many thanks for all of the hard work and dedication you all give to the patients. I think without you people the doctors could never do the job. Lynne

Thank you all so much for sharing your information with me. My grandson was taken to an ear nose and throat specialist My daughter said he inserted a tube into his ( nose or throat ) and she was told that the condition is tracheomalacia. His pediatician has also told us that is tracheomalacia and nothing to worry about it, he will be fine ! This was in Sept. 2003 . He was taken to see an alergy/asthma specialist on the 01/16/04 and he as already had blood tests for alergies, CBC, Cystic Fibrosis (DAA Prob), IBT Lab stat. 01/19/03 upper GI series. This is frightening! Medication ORAPIED 1 tsp x 3 days. Three quarters tsp x 3 days, half tsp x 3 days. ALBUTEROL 1 Vial every 2-4 hours until finnished. In 0ne week begin PULMINOT 1 vial am and pm. He was taking this medication in the nebulizer until yesterday with all the others. All other medication continue as directed NYSTATIN for thrush again. ERTHROMY/SULFISX 2ml 4times a day. Since Dec my grandson has had Bronchiolitis and resperitory distress hospitalised for 3 days pneumonitis He isnt getting better. Lets hope this specialist can find out some things and then we can fight it. Did we do the right thing by forcing the pediatrician to refer us to another doctor, specialist in this field? I think so! Floss

Hello, I would be greatful for any information reagarding tracheal malasia. I am a grandmother of a 5 mth old grandson with this problem. He was treated for a snuffly nose and possilbe sinus infection. Given 3 different types of antibiotics, nothing seemed to help. He had thrush so bad his mouth was bleeding, the dr treated him for that. He was taken off mothers breast milk and put on Neutramegin formula. He has had broncholitis and respitory distress and hospitalised once. Now using nebulizer and having treatment 3 times a day. He doesnt seem to be getting any better. He is just being treated for lungs wheezing and congestion. tomorrow he is going to see a doctor who specialises in alergies and breathing problems. This is very frightening for the parents as they are both deaf and using all of their energy taking care of him. Do you have any advice on the subject. Thanks Floss