KateyBug

I'm heading off for a bit, letting you know. I will return tonight at around 11. Did not notify anyone before though now I am. Graceful day everyone

Alright. Thank you. Another few things, if it would would alright with you? I've been having conflicts with feeding. He is very friendly and cooperates as much as he can. But his body still has hardship. First thing, his tongue and mouth have reflexes. Sometimes his tongue denies the food and often some bites shoot from his mouth. Once in a while he gags and brings his food up with vomut. A couple times he's gagged on saliva (he drools sometimes when he is hungry or ready to eat, when his system is malfunctioning) and it's hard. Any advice? Second, he has food dilemmas. He is usually not picky, and will eat or drink anything. However occasionally, he will refuse certain foods. For a week, he would not accept anything vegetable or dairy. I could not balance his nutrients with only fruit. He went back to his normal eating again, yet it was not good. Note, everything is currently good though I spread it out. I'll use today's meals for example- a breakfast can be oatmeal and applesauce or yogurt with juice, a lunch could be chicken and rice in sauce and sweet peas with milk or juice, and a supper could be an entrë such as a loaf of soft meat with gravy and baked potatoes and corn and sweetened baked apples with milk and a piece of shortcake (he prefers supper to be lar, he likes a full tummy for bed). I balance it out. Although sometimes he will go through picky phases. Advice? I'd like to compromise and and meet needs and comfort simultaneously. I'd like to be as kind as possible too. When he has an issue I want to be able to help him. Finally, i massage him for circulation and digestion and gas. From meals, I will massage him specifically for gas. I relieve him of flatulance and eructation by thought of comfort. But sometimes I will work for a long time before he starts letting gas out. Is there a way that is convenient? Any specific areas to rub and focus on to relieve him even faster? Possibly any more advice with gas, especially burping, that don't require medicine? (He has a he time with medication and only wants it when it's a must.

He obsessively runs his hands or fingers along his lenses. Not accidental smudges. Rather like he is deliberately messing with them. How can I let him know I'm concerned and maybe communicate further enough to maybe find what or why this is a habit for him?

I am thinking why he would be doing this as well. He does not have impulsive gestures (besides reflexes). Usually he knows what he is moving his hands to do and he can fully understand. There's just poor coordination. Any help on that? It is hard to communicate with him. The only things I know, like his favorite meals and activities and books and movies, was from either experiencing his reactions or from 48 hours for orientation when we got to know one another.

JustBeachyNurse, you seem to be helping quite a bit. Thank you. Even though that is description for adult and elderly caretaking, it is very good in helping me care for my patient! It helped me understand a few things. However one thing I still possess a problem with- glasses. He wears glasses. I am persistent. He knows it's best to not handle his glasses, to prevent injury, due to his poor coordination. am persistent on tending to him. I remove his glasses at bath time or reading time and and times he must lay on his belly and at nighttime because I know it would be risky as well as simply uncomfortable for him to try to relax or to fall asleep with glasses. I place his glasses on him in the morning and for during the day, at his opinion. He is nearsighted, by the way. I take care of them. I clean and inspect them every few days routinely. However sometimes he fiddles with his glasses and smudges the lens with fingerprints. I've only witnessed it a couple times. Most of the time I notice when i walk in and see marks all over his glasses. It's not a constant issue but often happens. What can I do for this? Any help please?

We are a small Island nation, west of the United State of Hawaii. We are out own little division of the world. We are secluded physically and by daily or personal contact. We speak English, Spanish, some Dansuk, and we have our alphabetation, including 27 letters that are easily translatable to the Americka alphabet. Is this of your alphabet? Well yours translates to ours, so it is easy for me. Hawaii state is the closet body to us however we have no affiliation with or for them. What is a capital city? I understand what the term city is, but what is a capital city?

Thank you. I will check it out and get back.

I've done string nursing before this. Do you know of the term string nursing? Do you haveb this?

I was trained in community, in classes, then two weeks with a personal guide. Not a good education system but we at doing best we can. My patient is only the second case of disorders that are this severe. I was doing string nursing and I volunteered to take the risk and put this patient's worries in my hands and became his caretaker, after they gve me about a month training.

For dudette10 You say It is obvious you are not in the US and that you may not have had the education and resources that nurses and caregivers have here. However, I am impressed with your commitment to doing a good job for your patient, and your desire to increase your knowledge to give the best care you can. Good luck to you! Thank you for the luck wishes! And thank you for giving me some advice on this! (Not to offend, but since I assume these people are all Americkan, then I want to say Americka is a pushy.

This is of everyone here- Second year in business since I've previously got schooling.* We dont have a good education system here. And there isn't too much to study when it comes to conditions.* My patient is actually the second case in all of our reports. We are still working with this. I was doing string nursing and I volunteered to become caretaker for my patient because they were not sure what to do. His parents were also in a wreck with it. It was a big bem. We cannot really contact any outside so we can't get research files. Our nation is actually in a big rivalry but no one has spoken of it. We just "don't exist" to keep from issues. We're closed. No one from the two Americka are allowed to access us as apparent.

Second year in business since I've previously got schooling. We dont have a good education system here. And there isn't too much to study when it comes to conditions. My patient is actually the second case in all of our reports. We are still working with this. I was doing string nursing and I volunteered to become caretaker for my patient because they were not sure what to do. His parents were also in a wreck with it. It was a big bem.

I am worried about my patient's dignity. We are nurse and patient yet we are buddies, and I would like him to have it easiest as possible. How do I allow him to have as much dignity as possible during diaper changes and baths and physicals? Description of him: I am nurse and caretaker to a mute male, 14 years old. He has failure throughout his body, including problems with digestive and nervous and vital systems, and I must tend to him. I massage his belly to bring about eructation (burps) and flatulence and to improve digestion. I also massage him daily to help with digestion and circulation and to soothe him. I handle hygiene and intimacy. I give him physicals or check ups once a week. I bathe and groom him regularly and take good care of his skin. I diaper him since he dislikes bed pans or catheters. Not to mention he does have sexual insecurity, even with puberty, so it is even worse on that part. I occasionally administer enemas or laxatives also. We've agreed that it is smoother for me to spoonfeed him, since he has poor coordination sometimes. Although I do respect him and I assure meals are satisfying. I do talk to him kindly. I communicate with him and make sure I know what he needs or what he wants me to know, even though he has difficulty replying or talking. He cannot communicate easily but he is very intelligent and he has a very active mind. Even though his body cannot function correctly, his mind and feelings are still working fully. So I am concerned. He does enjoy the care. He likes massages and such. He knows he can trust me and that I can help and comfort him. However, things can be too overwhelming, like my "full control" or his overdependence. It is already hard enough for him, I believe. The least I could do besides being very friendly is help him keep his dignity during personal and peritoneal care. Any advice on how I can do this? Also any suggestions on how to personally make each tasks a bit easier for us both? Any methods you all use?

PDN, what specifically is it?

I know how but I am just asking how you guys think I could help keep him from losing dignity. I don't want him feeling humiliated.

What do you mean? And sorry, but what does fish do in the discussion?

I am mostly concerned about the "personal" care. Anyone else have advice on the bathing and diapering and dressing? How I can help him with dignity at that point? Please?

I am not sure. We are just closed in I guess. I think of it as the Bermuda Triangle. Have you heard about this? Well, our nation is like that. No one studies it and not many people reach here. As you would probably say, it is abridged (if I used that word correctly). It is like China to us. We know of the USA and Canada and about the many other countries of Eurasia and Australia and the countries of South Americka. All but for Eurasian China. None of us have it on record. We recognized its existence 5 years ago.

We have social media however I'd actually prefer help and personal answers from higher educated nurses and many some with more experience.

I can tell you where I'm from and residing. No problem with that. However it is confidential and unrecorded in most public views. It may be undocumented for you guys of the US. My nation is titled as Natiun nérby Kind, Nation of (by, for) Grace in terms and is officially named Brastroun.

Thanks for cooperating. And I will see that and get back to you.

Answering to this and all. It is difficult to understand half of what you are saying but I am trying. I like in a confidential and closed in nation. It is west from the US state of Haiwaii (however you spell it, dear) It is not specified in a continent. We have our own training and care units. I have degrees but it's hard to communicate and tell you about my own self. We say diplomas or passes oe education. Here we don't use the term degree but I found it somewhere on this site and searched it and it means the same thing, just about. I am sorry for the inconvenience. Anyway, I got a degree for housing patients and caretaking. I have done nursing but it aide here. We dont have the best medical, at least compared to the US (your residence, right?). We don't know much. Due to low population, we dont deal with many cases. We only have 10 recorded incidents of serious syndromes and we have 164 patients with mental or physical illness in our medical field. My boy is actually our second case with very severe issues. We are still studying. Also due to location and separation, it is hard to contact any bigger medical centers out of the nation who are smarter. And intimate here means private or inside care, dealing with the more confidential body areas. These areas to us include the two organs, the bottom, the bare soles of feet (unless it is for sports or water activities), and your lower back if you're a woman and the back of your thighs if you're a guy. That is for your understanding.

I mean by the diapering and bathing please.

Also guys, please: How can bath time or diapering be less "drastic? We are adjusting however no matter how close we get, the intimacy will never be 100% okay. But how can I make things a bit easier for him?

By the way, why do you ask?