momkim

Thanks so much for your reply! My daughter was treated a year ago with 4 weeks of IV antibiotics then another 8 weeks of oral antibiotics. There is no sign of infection now. Just lingering pain. I took her to see her family doctor yesterday who has given us Naprosen 3 times a day and told her to take tyelnol arthritis twice a day. We've only had 2 doses of each so far but it seems to be helping - last night she slept all night for the first time in weeks (and this was after doing her paper route and having a soccer practice)! The family doc was surprised that she had been given such a minimal dose of the Vioxx and was not surprised at all that it didn't work. I think it helped that she was in considerable pain when we were actually at the doctors office yesterday. It seems when we see the specialist she is having one of her better days and I don't think he realizes the extent of her pain - even after we explain it to him. Hopefully the CAT scan we had yesterday will help give us some insight into the cause of this pain that she is still having. We'll just sit tight and wait - again.

They are unsure what to do...at first they told us to give her stronger doses of tylenol or advil (now we are up to the max. recommended dose) then we went on to the Vioxx although they were unsure of which meds they could give her. They said there have not been a lot of studies done on pain control for kids and therefore were unsure of dosages for children. Today I am taking her to our family doctor to see if he has any suggestions as we can't get back to or orthopedic specialists until mid June. We also have a CAT scan today to try and hopefully figure out the cause of the pain she is still having. Its all so frustrating to see a kid in extreme pain (limping, crying etc.) everyday *sigh*

I have a 12 year old child who is suffering from chronic osteomyelitis and has been struggling with it for over a year. She is in almost constant pain - worse at night, sometimes waking her up 3 or 4 times. She has been given 12.5 mg of Vioxx per day but it only lasts a shor while then the pain is back. I am leary about giving her Tylenol as well as Vioxx - it just seems like so much medication. I also struggle with giving her tylenol or advil every 4 hours every day(extra strength is the only thing that helps) as it seems so excessive. Any suggestions?