Hello, I work in the PICU and deal with dying children and grieving families frequently. There is no easy answer and it is a situation where it is not for us to decide what is right or wrong for the parents to do. You have to remember they are not educated in the medical field, so they see thing so differently. My priority is making the patient comfortable and being there for the patient and family as I see best. Make sure everyones needs are met and the family is made available the resourses they need. We have had many parents that did the same, ie didn't come to visit, etc. If this baby was in the NICU after birth for a long period of time, we see this alot. It is weird and hard to accept. We have had kids die here without family and we all take turns holding the children so they won't be alone when they die. It is a hard job, but the kids have us..and I know that makes a difference. Take care, Karen