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bmullins34

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  1. I just wanted to say thank you. My daughter has pseudo-seizures. She was a perfectly healthy child unit April 2008. Then she started having about 26 of these a day. It has been a terrible road. One doctor suggested that she was "faking" so after she went to sleep, I snuck into her room and watched her. She had several right there in front of me without even knowing that I was in the room. I have also video taped the episodes with a hidden camera. I have seen her fall and cut her feet, carpet burns on her knees, her glasses have fallen of and broken, she's fell out of bed and bruised her back. My daughter sits and cries because she can't do things that other kids her age are doing. She won't even go shopping (which she loved to do before). This has affected her whole life. We are at the point now where we are taking her to a psychiatrist to see if that helps. I was appalled at some of the posts I read about what some nurses will do to see if a patient is "faking". Maybe some of them are but that doesn't mean you should disregard them or treat them as less than human. It has been almost a year now and she doesn't like it when people make a fuss over her, she has an episode and moves on. During an episode I just keep her from hitting her head and then I leave her alone. Hopefully the psychiatrist can help. I will let you know. Again, thank you for letting people know that some people actually have a problem and are not faking it.

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