Jump to content
Riley1234

Riley1234

New New
  • Joined:
  • Last Visited:
  • 14

    Content

  • 0

    Articles

  • 1,515

    Visitors

  • 0

    Followers

  • 0

    Points

Riley1234's Latest Activity

  1. Riley1234

    CNA with Autoimmune disease

    Sue you are so right about that. I am the same way, can't get enough sleep. It's taken a couple of years but I have realized that I have to take care of me! Having a family you work, cook, clean the house, shuttle the kids around and you never think of yourself. Make sure to take care of yourself. Keep in touch and stay well. Woofy it's amazing my illness presented exactley as yours did. The migraines were incredible. I was jaundiced as well for a good week before I went to the ER. I remember saying to my husband when I arrived home from work that night that I felt as though I were dying slowly. I hadn't felt well in about 6 months but thought it was stress. I did call my PC and described the color of the urine twice and they said I didn't need to be seen it was a classic UTI. I asked didn't they need a urine sample and they said no. Second time said they needed to up the Bactrim. I was the opposite on pred. I couldn't eat and had steroid psychosis. I was sleeping 3 hrs and running around and cleaning everything in site. I was manic... I hope I never have to take that med again. Keep in touch and let me know how your doing. Stay Well, Riley
  2. Riley1234

    CNA with Autoimmune disease

    Glad to know another in the health care field that has had this illness. It can be done. I had the awful pred. for 6 mnths also. It worked for the AIHA but not the ITP. Rituxan put me in remision and my counts are all in the normal range now. When diagnosed my crit was really low an 11. Does your Dr think you may have lupus? Your titer is quite high. My hemo is hesitant to diagnose me with lupus as my ANA hasn't been positive. I do have the APS antibody's also which I guess is a good indicater. Thanks for all the advice everyone! Stay well, Riley