Ltac

[zcubed]

I need help in terms of information. My name is Eileen, I am an ARDS survivor and also President of the ARDS Foundation, a national, not for profit organization dedicated to supported those with ARDS, and their families, raising public awareness, education, and funds for research.

I get asked this question often, but never have adequate answers ... regarding vent facilities, throughout the country, when a patient is being moved out of the hospital. Often the families receive suggestions, sometimes not more that one option, regarding where to send their loved one, and often they are given one day, or two, to make this important decision.

Some of these facilities have a very poor weaning record for vent patients and so I am painstakingly attempting to create my own list, in light of the fact that I have emailed every organization I can find and no one is able to give me a list of LTAC facilities.

Currently, I have about sixty hospitals on my own list, not counting Kindred and other multiple hospital listings. I now know that these is no list but every time someone tells me about a LTAC facility, I am able to locate more.1 If anyone can help me further, I would appreciate it. We are going to post the list so others can utilize the info. The US or Canada, it would be wonderful!

Thank you for your time, Eileen

[Mint Julip]

I've PM'd you.

[zcubed]

Nurses ROCK!

Thanks for that bit of valuable info!

That is why in my nine week hospital stay, my nurses, and therapists became my friends!

Thanks. Eileen

[mistersleepy]

Madonna Rehab Hospital

Lincoln, NE

[zcubed]

I stand corrected!

There is a list, though it is not totally complete it has 145 hospitals listed; I am going to add the other hospitals that I have with those on the list, and post them on my website... along with all of the links about LTAC facilities that I have found in all of my searches.

If anyone has an interest in ARDS, let me know and I will try to help you out. Eileen

[zcubed]

Thank you! We have created, with all of the help we received here, help we gained from others off of our site who actually had family sent to LTAC facilities, a list...

If anyone is interested, we have our first temporary list at this link:

http://www.ardsil.com/cgi-bin/ubbcgi/ultimatebb.cgi?ubb=get_topic&f=6&t=000049

And we will update and create a second list, and make it permanent on the website, some with web addresses, and also a list of resources at the bottom, articles and other links as well, so if you have patients or families who need to decide among a number of LTAC facilities, perhaps this will be of help to them as well.

Thanks, Eileen

:)

[Mint Julip]

That's quite a list Eileen! Glad you found some of the information you needed. Very nicely put together website by the way.

[zcubed]

Thanks; if you know of any useful links, I can always use info on sepsis, prone positioning, weaning, hospital psychosis, the usual ARDS topics, and anything in plain english, links or anyone who has written and published something and can get permission to release the article elsewhere, we love information, both on the website and the online newsletter.

After I finish this, I will have to tackle something else with a vengence!

Must be why I beat the ARDS :chuckle

Eileen

[zcubed]

http://ardsusa.com/rehab_hospital_links.htm

Here is a comphehensive, albeit incomplete, list.

This link has the hospitals and many have web addresses. If any know of others, feel free to let me know.