I have a new job in a new school district this year. I am doing case management and essentially managing chronically ill/medically high needs kids and helping coordinate their care, paperwork, IEP/504's, etc. So think along the lines of those families that have so much going on and you get swamped with all the chasing paperwork, calling providers, talking with teachers, etc. I take those kids off the school nurses' plates and manage them instead. So I am realizing how some parents claim to be their child's "biggest advocate" and do everything they can to "fight" for what their kid needs/deserves, yet do everything they can to make getting those services difficult.
I have two cases in particular and the mothers are the reason we are having issues in the first place. One mother (who I am convinced has borderline personality disorder with schitzoid tendencies) has made all of these requests for accommodations for her kid. We all meet and she is hostile the entire meeting. I write down all of her demands and call the specialty clinic for his condition to speak with the nurse. The nurse agrees to essentially write a 504 with all accommodations which we can roll into his IEP. So nice of the nurse. So I am thinking great, all set. Nope! Mom gets the 504 from clinic and is upset that it doesn't have all her requested accommodations and tells the clinic they do not have permission to share it with me. Tells me that until they "fix it" we can't have it. The medical component is the only thing standing in the way of a completed IEP for this kid. I told mom that. But at the same time she is fighting with us that we haven't competed the IEP but she is the reason why She asks for all these things but doesn't give us anything in return. Still hasn't brought in a copy of his physical (they are new to our district), still hasn't signed consents for meds at school (but demands he self carry and self administer), etc. ARGH!!!!!!
My other case is an overly involved mother of a very complicated little one who is in a school out of district. Our district provides her 1:1 nurse (district policy). Mom and nurse do not get a long very well, but nurse is competent and providing good nursing care. Mom emailing to complain about every little issue, asks for things, etc. I email her back in response to her "urgent" requests and tell her we are still waiting for doctor's orders, still waiting for her to supply a medication list, still waiting for other things...crickets. So she wants us to provide all these things but doesn't turn in any of the things we need to be able to provide safe nursing care for her.
I just don't get why these parents are the biggest barriers to their child getting the care they need, yet acting as if we are the ones not doing our part. I know I am preaching to the choir here. Just a vent more than anything.