Hi Southernbee Girl and Everyone else,
Yes I have tried many other means of dealing with the IC since I got it in Aug. 2008. I have actually tried everything my specialist (actually a famous IC specialist) gave me which was Valium, which worked for about a month, and Elavil, which also worked for about a month. My Dr. doesn't believe in hydrodistention. He hasn't offered Elmiron. Actually, he hasn't definetely diagnosed it. He says my pain is either IC, Pelvic Floor Dysfunction or a nerve pain. He said all three would be treated the same way, so it is irrelevant whether it is IC or not. On my own, I tried physical therapy. It made it worse. Then I went back to the rehab I was at a few years ago when I also got addicted to Percoset and Colonopin after abdominal surgery. They set me up with a pain specialist who had been a pain patient there 4 years ago, recovered and lives with his back pain. He suggested many means of dealing with the pain including meditation, massage therapy etc. He was so wonderful that I decided to check back into the rehab for a 10 day detox. It was a disaster. I relapsed almost immediately after the discharge and ended up in the ER where they gave me Percoset and Dilaudid. After that, I just gave up and have been taking the Percoset and Valium which does relieve the pain. I started taking the Valium again, because another Dr. ( a urogynecologist who diagnosed my rectocele) said if you stop Valium and then start it again, it helps again??? I am embarrassed to go back to the meetings as I keep relapsing ,and I feel like too much of a failure to go to meetings or call anyone. I think you may be right that this is a relapse. When I am upset, like having a fight with my husband, I do look forward to taking the pills. I hate being addicted so much that I would go back to the rehab for the 30 day program again, but I am too afraid of this pain. I have a lot of scheduled doctor appointments to try to see if I can find anyone to help me. If I find someone who helps, I will probably have to get detoxed in the rehab again. I am incapable of getting off addictive meds myself.
You are absolutely right about the alcohol. During my divorce about 5 years ago, I was drinking like a fish. I have not touched alcohol in a year. June 7th will be my alcohol anniversary. My group wants me to celebrate, but that would be dishonest for me, and I won't do it. Right now, there is nothing I can do except go to all these doctors and try to get some help. Thank you for understanding this disease so well and for trying to help me be honest about it. We all know how cunning and powerful this disease is. Krisssy